Newly Diagnosed with CLL

I feel a bit of a fraud being on here , My name is Emmah, 46  I live in the usa at the moment but I am from Sheffield and was planning on returning in a few years . So a bit of my back story , My mum passed away in 2017 from AML it was a shock to us all , it was caught late , the NHS fought to keep her with us . Since than I found out my grandmother also had blood cancer before she pasted at 98 years old . So fast forward to early this year , I had a lump on my breast , I wasnt worried had cysts before , called my doctor here in the USA to make an apptment , found out I was no longer a patient as I hadnt visited in 2 years so they dropped me lol, set up appt for next avail which would have been yesterday lol. So I start looking for a new doctor , find one set up appt for september . Anyway feel fine , lump gets bigger and painful quick , called breast clinc told need referrel from doc , so as a last ditch reffort I end up in ER , after bloods and scan , its a cyst get refferal to clinc , have cyst drained the next week ..I kept My new doc appt after seeing how hard it has become to find a doc , she turns out to be lovley , give me a physcial inclunding bloods in office , checks all my history online and sets up a 2 week appt for results , I return says I have a raise in white blood cells and anmiea , redraws bloods, recieve a call to say still raised and is refering me to a hemotolisist ,( I could hear my Nan in my head saying you need Iron my Girl ) any way sorry so long of a post , Get a call from hemotalisist to say doc will review and call back with an appt . Well I get a call back this time from oncolgy and hematology for an appt for the next week the 10th , 2 days ago . I knew than my legs went weak and I relived the 18 months of Mums Cancer battle .That was it I pulled my blood results and referrels online and off to DR Google , I knew a bit from mum and watching her levels daily , i know nothing lol what i did do is prepare myself with basic knowledge of what the doc could tell me , I just kept worrying that I wouldnt make it to the UK for christmas which has been planned for Months, taking my daughter and hubby this time. So Thursday rolls around , meet a lovely Doc , do the standard so what brought you here ect , turns out he surports Arsenal lol and than he tells me its CLL , It was the best of a bad lot and a relief . so more bloods back in 2 weeks . and Hoilday is still on. 

Nice to meet you all xxx

  • Hi Divine,

    Welcome to Cancer Chat. I hope you're getting on OK - I'm sure you've been through a lot of uncertainty and some worry with this. It's good to hear you've had various checks and tests done and that you now have some of the information you need - and also that you're able to make your holiday still.

    If you're waiting for any more information regarding any next steps then hopefully you can get this soon.

    In the meantime I hope that the forum is helpful for you.

    Wishing you all the best,

    Ben
    Cancer Chat Moderator