Secondary breast cancer & pleurodesis. Has anyone had this?

hi I was diagnosed with breast cancer in 2016 I had a lumpectomy chemotherapy and radiotherapy, in 2019 this had spread to my bones causing a pelvic fracture I had radiotherapy for pain in 2022 nodules were found on one of my lungs I suffered extreme breathlessness they drained 620ml of fluid but 2 weeks later I couldn’t breathe ,  I had a pleurodesis on 4 October 2022 they drained a further 900ml of fluid I have been home from hospital for a couple of weeks but I’m finding it difficult to walk even a couple of feet without becoming breathless I honestly though that having this operation would have made a difference but it seems I’m back to square one !

has anymore else had this operation or any advice they can share

!

  • Hello Kayelderflower

    I'm sorry to hear that following your recent pleurodesis you're still struggling with breathlessness. It's understandable that you may be feeling anxious about this and have questions about why things haven't improved. 

    I've checked the forum and I can't see that you've anyone who has recently mentioned having had this procedure done. Hopefully if there is anyone with any experience they will post to share their experiences with you but in the meantime please do get in touch with your clinical nurse specialist if you have one or let your Consultant/GP know that things haven't improved. 

    If you want to chat things through with one of our team of nruses you're welcome to call them on 0808 800 4040, Monday to Friday 9 am to 5 pm. 

    I do hope that things improve soon and you have some relief. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

  • Hi Jen

    thank you so much for replying to my post in one way it’s good news that no one has had to have a Pleurodesis operation . After several failed attempts to get a GP appointment a doctor phoned me and has prescribed a ventolin inhaler and my breast cancer nurse talked to my consultant who has prescribed a short course of steroids and has agreed to see me tomorrow evening .

    Again thank you for replying I was beginning to feel a little isolated .

    kind regards

    Kayelderflower