Hello NannyGee, 

Welcome to Cancer Chat! You're definitely not moaning and we are all here for you to listen. So many people on here will relate to how you are feeling at the moment. It's great that you have responded to well to the chemotherapy treatment and it does sound like you have been through a lot but that you are coming the other side despite the little bumps in the road. So hang in there! 

Don't feel guilty about shutting your eyes and resting when your body feels the need to do it. Do mention your achy bones to your GP if you get a chance in case it is a side effect of your treatment or the Letrozole and they may have some good suggestions for you. You are doing incredibly well and it seems like the treatments have been successful so I am keeping everything crossed for you that you make a good and quick recovery and that normality comes back to your life.

If you ever felt the need to talk to our nurses about this, don't hesitate to give them a call on this free number 0808 800 4040 - their line is open Monday to Friday from 9am to 5pm. 

I hope that you will hear from other ladies here who have been through all this before and suffered similar side effects and that they will come shortly and share their story with you.

Best wishes, 

Lucie, Cancer Chat Moderator

Hi NannyGee

im only partway through my treatment, had double mastectomy and lymph nodes removed on one side, radiotherapy and chemo still to come. My cancer is ER positive and HER2 negative (or should I say was! Technically cancer free after the surgery, everything else is preventing it coming back)

im normally very active and have a busy job so having to rest and take it easy has not come easy to me either. I have times where I feel good and my energy is coming back and other times I feel I've gone backwards.

I think all this is normal and I know it's going to get worse before it gets better as radiotherapy and chemo will take its toll. 
take care of yourself, eat when you're hungry, rest when you're tired and call on your friends and family to help with practical stuff if you need it.

I'm enjoying walking and yoga at the moment and hoping to be able to continue, even if it's very short sessions or a bit hit and miss. 
I hope you don't mind me asking, what are your top tips for during chemo? I've just had my dates through and I'm dreading it

Best wishes

Ree

Hi Ree

Thank  you for your kind words .When reading through others peoples stories on the chat pages I feel so silly complaining about my  side effects ,which seem so trivial .

My tips for chemo .Take each day as it comes.I had chemo back in 2004 and the treatment has changed so much since then.After my first chemo this time I was waiting for the awful sickness to start but because of the preventative medication they gave me it never came .Such a relief as this is what I dreaded most .Diarrhoea was a problem to start with but again the medication I was given helped me straight away .I found around day 7/8 after my chemo was when side effects kicked in .Bones ached and felt exhausted.I don't give in easily but around this time I stayed in bed and totally rested.Eat as healthy as possible.Chemo number 5 was postponed as I had low platelets  and as weird as it sounds I was disappointed that it was postponed,you just want to get the chemo completed.Now for the hair ! My hair started falling out after two weeks .It's horrible and a awful shock even though you know it's coming .  .My husband shaved it off for me as soon as it started to shed.To be honest once it was gone I felt relieved that ,that  part was over .I know this is a big thing losing our hair but there are so many nice wigs and head coverings out there .I decided against wigs this time and opted for scarfes.Especially after such a hot summer .

Ive always said chemo is the friend you don't want but the friend you need.

wishing you well Ree x

Hi Nannygee,

I am almost a year post single mastectomy and removal of lymph nodes. I too am on letrozole and 3 monthly injections of Goserelin. I am not surprised you're tired if you're still undergoing treatment and I would say if you can go and lay down and sleep in the afternoon, then you absolutely must...you need to be kind to yourself and give your body a chance to heal. Shut down those guilty thoughts, because there shouldn't be anything that's more important than your recovery at this time. 
 

I've hit a bit of a wall these past few weeks and am feeling very tired by about lunchtime, but I've been having a sleep most days and can really feel the benefits. The aching too is now part of my life, but I've just tried to accept it...it's not all the time and usually worse when I'm sat around. 
 

You've  been through an awful lot and you're still going though it...I'm sure you'll bounce back soon, just give yourself a bit more time. 
 

Sending you best wishes for the rest of your recovery, Anna x

Thank you Anna. I now realise it's not just me and feel reassured that it's a normal to feel the way I do .

I've just finished radiotherapy last week so that's a relief .Skin very sore but told it will subside after a couple of weeks which is good .

I read that you are having Goserelin injections,wondered if you have had any side effects ?.My Phesgo injections have been postponed ,had 9 so far ,with another 9 to go.Been having regular echocardiograms and just had a MUGA scan too on my heart .Apparently it can effect the hearts function.So now been put on heart meds to see if it can recover then I can start my Phesgo again .I'm just going for another echo today .So fingers crossed all ok then I can crack on and get this done.

Best wishes to you too x