The specialist will be the best person to discuss the possible next steps so I hope your appointment with oncology goes ok. It might help to write down any questions you have and take them with you. Hopefully that'll help you feel more prepared and be useful for making notes so you are able to take everything in.
Hi Lara I had grade 3 ER positive Her negative invasive ductal cancer diagnosed September 21. I completed a lumpectomy, FEC chemo every 3 week for 6 cycles and radiotherapy, I am now on hormone therapy letrozole for 5 years. Happy to help if you need to know anything at all. Take care xx
thanks so much for your reply my appointment is tomorrow for chemo start date and which chemo I'm having in so nervous about starting it and how I'm gunna feel at the no I feel great the thought of having the sickness ect is a real worry , honest opinion how were you on chemo xx thanks so much for your reply x
I'm currently going through chemo for bc, I've got an estrogen positive, progestogen positive HER negative tumor. It was 6cm and after 4 sessions of chemo its shrink to 1.4cm. I've got another 4 sessions of chemo left.
I've had paclitaxel every 2 weeks for 4 doses and now I've got EC every 2 weeks for 4 doses.
I'm expecting more nausea and tiredness on the EC but to be fair I've been OK in the paclitaxel. Some numbness to fingers and toes, a few days of been achey between cycles. I've lost alot of hair but using the cold cap in the vein attempt to be able to carry on lookong normal.for as long as possible. I've got enough hair for a ponytail and headband.
I'm starting to think a bit more about surgery now , planning a right mastectomy end of November. Have you got any advice or tips on thst. I'm worried about lympthodema
Although it's not nice obviously to be in these chatrokm I do find the advice and support so helpful
thanks so much for reply and info I will no at my 4 pm appointment today which chemo I'm having can I come back to you when I no thanks for sharing your experience the unknown is driving me crazy xx
I am HER2 positive . I have started EC chemo every 3 weeks for 4 cycles then I move on to weekly paclitaxel for 12 weeks. I am also having targeted chemo - Trastuzumab and pertuxumab. I had my first EC last Tuesday They said the EC would knock me out, I thought I would sail through it. I was wrong
My lumpectomy is scheduled after chemo is complete so in the New Year xx
Hi Lara the first one was the worst but this was due to the fact that I had side effects from the anti sickness tablets metochlopramide which made things much worse however once this was changed for my second cycle to ondansatron it was easier. The chemo wasn't as bad as I thought but it is rough at times. You just feel very weak and very fatigued but that improves as the days past. I had many side effects the worst one mentally is the hair loss by far and mine was painful as it fell out only days after my first cycle but this eased when I had it shaved off.
Constipation and piles were another problem but managed with laxido sachets. Any side effect can be managed relatively well so don't discard also not everybody gets the same side effects.
I know it seemed ages off being on the other side but the time soon goes in. I completed all my treatment in June, I'm back at work full time and my hair is coming along nicely. Just keep looking forward and you will get there. Be positive which I know is difficult but it will soon be done.
