Failed hysteroscopy

Recently I have had a hysteroscopy and it failed due to scar tissue blocking the womb cavity. It's been advised that I have a full hysterectomy. I really don't want to go ahead with thiss. I spoke to the consultant and he said that there is no other way to get the biopsy. The womb lining is 5.9 mm thick. Is this dangerous? Could the hysterectomy be avoided?

  • Hi Sammy,

    If you have had an endometrial ablation (if I've got this wrong then sorry!), that is removing the womb lining which subsequently scars over. So the "failed" hysteroscopy and womb thickness has to be interpreted in the light of that.

    I think it might be a good idea for you to chat this one over with the nurses to better understand the situation.

    They are not on over the weekend, but you can either post a question for them to answer when they return (make it clear if you have already had an ablation as it does change the picture) or telephone the helpline number. 

    Or you can post to see if there is anyone who had a womb thickness like yours after having an ablation and, if so, what happened? You can't compare womb thickness between someone who has had an ablation and someone who hasn't if that makes sense.

    Sorry you are having to go through all this. Sending love and hugs. xx

  • Hi

    Thank you for your reply. Yes I have had an ablation back in 2014, this remaining scar tissue was the reason that a biopsy couldn't be taken and a hysterectomy was advised. It feels quite overwhelming at this point and if I can avoid it then I would like to. 
    I will take your advice and call the nurses in Monday morning.

     

    thanks again 

    Sam x

  • Hi Sammy.  I had a failed hysteroscopy following post menopausal bleeding.  The ultrasound showed a very thick endometrium which they seemed extremely concerned about.  The first hysteroscopy failed due to the presence of a massive fibroid, which I was previously unaware of.  
    I had a second hysteroscopy under ultrasound guidance.  Thankfully I had a general anaesthetic for both procedures, as I think they struggled to get into my cervix, and the fibroid had pushed my womb well over, necessitating some very clever work by two gynaecologists working together.

    unfortunately, the resulting biopsy showed I had locally advanced endometrial cancer, stage 3C, grade 2.  I had a midline incision total hysterectomy two weeks later, which actually wasn't too traumatic, I was discharged home after 5 days, and I've just started chemo.

    I had no Gynae history before the post menopausal bleeding.  I'm 62 and childless.

    as someone else has said, we are all different, and the people best placed to advise you are the medics who know you and have seen your scans etc.  but there's no harm in asking if another hysteroscopy could be attempted, they may have reasons why not, but at least you could have an explanation.

    I wish you all the best.

  • Thank you for your message.

    im sorry to hear about your troubles. I wish you well and hope that things improve for you.

     

    Much love

    Sam xx

  • Hi Sammy193,

    So sorry to hear you are going through this.  However, you do need to speak to the nurses as each case is different.  Maybe they can attempt a laprascopic Hysteroscopy.  I had to have a Hysteroscopy under anaesthetic as the first one failed just with painkillers. This was done because my womb was thickened to 5.7cm and the cut off point is 4cm. They found a polyp which was cancerous high grade 2/3, but the stage is unknown yet.  A full hysterectomy is what was recommended and I did go through with it.  I have an appointment to find out the stage and whether I need any additional treatment.  I am recovering well at home.  See if you can find out more about alternate ways of performing the Hysteroscopy.  I hope all goes well for you.