Hello,

Thank you so much for replying.  At the end of April-mid May, my husband was diagnosed with:

*myelodysplastic syndromes (MDS)

*acute myeloid leukaemia (AML)

(It's a kind of bone marrow fibrosis cancer, combined with leukaemia). The thing is, normally this kind of cancer developes over years and years... but in my hubster, the damn cancer decided to hit him aggressively within 3 months. The consultants and haematologists are blown away... it's extremely aggressive & said that if he doesn't respond to the treatment, life expectancy is under a year.... This all got me for a #6

He spent almost 5 weeks in hospital & now I care for him at home. He has to get platelets & blood transfusions twice a week... so we're in hospital 4 times a week. Twice a week for full blood counts & match ups for the bloods he'll receive the next day. It makes me sad to know that without those transfusions he'll die.... in my mind it's just another form of "life support". 
 

He gets azacitidine per subcutaneous injection, 150mg for 7days, then 21 days of rest. This set of chemotherapy will be repeated 6 times ~ he had 2 now, 4 to go. Together with this, he is on an oral chemo tablet ehich he take twice a day, for 56 days... that's almost half way... 

Being his carer's my honour, yet I'm starting to feel alone, isolated, with a feeling of #runforestrun

Tell me more about ur husband...

So sad to hear this has happened so quickly, I've had Myelofibrosis since 2015 , but since 2 years ago it has quickly developed to a dangerous level and the docs are encouraging me to do a stem cell transplant.

is that something the docs have talked to you about?

vbk

I'm taking up the stem cell donated by my brother , there is 70% chance of success, 20% no change, 10% fatal. 
 

but my family and friends think it's worth the risk as I'm living like a zombie for the last few months.

vbk365

Hi, thank you for getting in touch - drs want him to respond to chemo first. He is very very very I'll....

Good Luck... I truly hope it gives you light at the end of ur tunnel. If I may ask, have u had chemo?