Cancer Research UK main site
  • Replies 3 replies
  • Views 839 views
  • Users 0 members are here

Letrozole

bec1
Offline

Hi all, I'm new to this post but was happy to see I'm not alone with the side effects. I have had a double mastectomy in Feb 2021 followed by letrozol and zoladex injections. My symptoms are everything that it says on the paper inside the box. It is affecting my quality life and my job( more on the sick than I am in work) the worse ailment is vertigo, muscle/joint pain, no energy.low mood. I am 53 but feel like 83. I work full time and care for my Husband who caught Covid in Dec 2020 and was ventilated when I was diagnosed with breast cancer, Covid has left him on oxygen 24/7 and in a wheelchair. So I have decided to come off all cancer medication as my day to day living and quality of life outweighs cancer returning. My husband has been given 3-5 years to live, I need to feel normal again and spend what time he has left making memories not laying in bed most of the day in pain. I don't know if it's the right decision but it's my decision.

Parents
  • Offline

    Hi Jenn, 

    Thank you for your kind words.

    I have now spoken to my Consultant and she agrees that I come off Letrozole for 8 weeks but continue to have Zoladex injections and vice versa to see how I feel after 16 weeks. 

    Rebecca x

  • Offline in reply to bec1

     

    Hi Bec,

    A very warm welcome to our forum. It sounds as if both you and your husband have been through a tough time in the past couple of years. Having taken Letrozole for 6½ years, I can appreciate how you are feeling. I am glad to hear that you have mentoned this to your consultant and that she is trying alternatives. There are other hormone therapies, which might agree with you better. Have you had a predict test, to tell you how much benefit you'll get from hormone treatment? Your consultant can arrange this and you might find this helpful when considering stopping treatment altogether.

    I sincerely hope that you find something suitable.

    Please keep in touch and let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx

Reply
  • Offline in reply to bec1

     

    Hi Bec,

    A very warm welcome to our forum. It sounds as if both you and your husband have been through a tough time in the past couple of years. Having taken Letrozole for 6½ years, I can appreciate how you are feeling. I am glad to hear that you have mentoned this to your consultant and that she is trying alternatives. There are other hormone therapies, which might agree with you better. Have you had a predict test, to tell you how much benefit you'll get from hormone treatment? Your consultant can arrange this and you might find this helpful when considering stopping treatment altogether.

    I sincerely hope that you find something suitable.

    Please keep in touch and let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx

Children
No Data

Speak to a nurse

Quick links

Follow us

Registered with Fundraising Regulator (logo)
Cancer Research UK is a registered charity in England and Wales (1089464), Scotland (SC041666), the Isle of Man (1103) and Jersey (247). A company limited by guarantee. Registered company in England and Wales (4325234) and the Isle of Man (5713F). Registered address: 2 Redman Place, London, E20 1JQ.