Neuroendocrine Cancer

Hi Everyone,

Its been 10 weeks since my dad was diagnosed with neuroendocrine cancer and I feel broken. We are awaiting the results of his octreotide scan from last week. The waiting has been just horredous, I am constantly anxious and I feel very alone as I don't want to add any extra worries to my family. Its also strange as he doesnt look ill but I know he is very ill.

I feel guilty for struggling so badly when its not me that has the cancer but just reading on the forums I know at lot of people feel the same way. I cry everyday and now my work is suffering (my employer is being supportive but have had to bring it up). I just dont know how to deal with this and the reality is that its going to get worse. 

Does anyone have any experience of these tumours? We feel a bit in the dark as we havent had any face to face appointments and they waiting is so bad.

Thanks

  • Welcome to the Cancer Chat community Koko although I'm sorry to hear about your dad's diagnosis. 

    Cancer doesn't just affect the person who has been diagnosed, but their family and friends too, so please don't feel bad or guilty for struggling with this news and as you've mentioned in your post, many of our members have experienced the same so you are not alone, and hopefully some of them will offer their support and advice to you soon. I hope you find this article about your feelings when someone has cancer useful as well.

    We have some information about neuroendocrine cancer on our website but if you have any questions or would just like to talk things through with someone then do give our cancer nurses a call. They're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m and they'll do all they can to help.

    You should be able to get further information and advice from Neuroendocrine Cancer UK.

    Waiting for news is always tough but hopefully it won't be too much longer until you get some answers and find out what happens next.

    Kind regards,

    Steph, Cancer Chat Moderator