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New member in diagnosis stage for a tumour + Lymphoma

marcexpat
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Hi I'm Marc, new member. Expat in Spain planning to return to UK for good.. In my early 60s.  This week had CT scan, blood tests. Start of next week 3 more appointments.  First one I think haemotology again to take a sample from a gland or node, and later on day another but I not sure what. I'm still at the waiting to find out stage but coping OK. Only a few days have gone by but feels like a month!

This has been a crazy ride this last week or two. Since last autumn I had been going to GP about a hard lump under skin, a 'cyst', then next visit it gets called a 'lump' , then called a 'lipoma', on waiting list for non-urgent surgery to have 'sabaceous cyst' removed, probably one year with covid. Then while waiting months, the lump changed and increased size at which point I went private and got biopsy done of it, just for my own peace of mind. I calmly collected the report, sat down with a coffee shop nearby to read the biopsy report and my jaw dropped with total disbelief. Very malignant and full of bad CD.. / bcl-.. code numbers. The moment I showed it to my GP all hell then broke loose. 

Now the crazy thing is I'm suddenly getting phone calls to come in for surgery to have the 'lump' removed, in first week May, I ask them if they know about a lymphoma diagnosis they know nothing about it. I now I feel nervous about having this "cyst" 'removed and sent of for routine biopsy', with what with what's been going on so far.. So this is my story so far. I think this is going to be crazy.

 

 

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    Thanks Ben. 

    Thinking about all this, what's driven me to kick up such a fuss getting a biopsy was my own past experience. I suspect I might have had a low grade non-symptomatic lymphoma for many years. I say this because about 15 years ago I had a 'boil' come up on neck which grew slowly, I'd been to GP several times treated as a lipoma which is not covered by the NHS unless causing problem while on long waiting list.  Then started growing quicker.and people mentioned it to me, I put it off then I went to my GP about something else unrelated and then right after dealing with what I'd came for, he said something like  "Please do not get up and leave, I want you to stay with me here while I make some phone calls"  A week later I had a appointmernt to have the 'lipoma' removed.   I asked at the time about whether there's a routine test of what they cut out and I don't remember what I was told, probably evaded the questionI , certainly never did hear any more.   So this brings me to the current day, I had another of these 'lipomas', while on waiting list it suddenly changed and grew. But this time there'e no "stay there while I make phone call" and passed more weeks and weeks of "cyst", "fatty lump" etc.

    I decided to get a biopsy done, just to put my mind at rest - but instead it did the complete opposite.

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    Thanks Ben. 

    Thinking about all this, what's driven me to kick up such a fuss getting a biopsy was my own past experience. I suspect I might have had a low grade non-symptomatic lymphoma for many years. I say this because about 15 years ago I had a 'boil' come up on neck which grew slowly, I'd been to GP several times treated as a lipoma which is not covered by the NHS unless causing problem while on long waiting list.  Then started growing quicker.and people mentioned it to me, I put it off then I went to my GP about something else unrelated and then right after dealing with what I'd came for, he said something like  "Please do not get up and leave, I want you to stay with me here while I make some phone calls"  A week later I had a appointmernt to have the 'lipoma' removed.   I asked at the time about whether there's a routine test of what they cut out and I don't remember what I was told, probably evaded the questionI , certainly never did hear any more.   So this brings me to the current day, I had another of these 'lipomas', while on waiting list it suddenly changed and grew. But this time there'e no "stay there while I make phone call" and passed more weeks and weeks of "cyst", "fatty lump" etc.

    I decided to get a biopsy done, just to put my mind at rest - but instead it did the complete opposite.

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