Hi Lucy,

A very warm welcome to our forum.

I am so sorry to hear about your new lumps. It is only natural to feel terrified whilst you are waiting for another MRI. Unfortunately, our imaginations nearly always lead us to the darkest places. I am not a doctor, but expect that there will be nothing to worry about if these lumps are benign. I would expect that they would find cancer in them if this had spread from your breasts. 

Not all breast lumps are cancerous. Many turn out to be benign cysts, fibrous or hormonal changes. Try to curb that overactive imagination and remind yourself that "these are not cancer until you're told that they are cancer". 

Have you got a date for your MRI yet? If not, I do hope that it comes through soon. It's the not knowing that makes this so hard to cope with.

Please keep in touch and let us know how you get on. We are always here for you.

Kind regards,

Jolamine xx

Hi Jolamine

thank you for your reply 

apparently the dr is confident the lump in my breast looks like a fibroadenama and the one near my spine possibly a neuroma 16 x 13 mm but this needs to be confirmed, this is what is worrying me most 

not a great day and have really gone to pieces as I went hoping all would otherwise be well and I could start treatment

i havent told anyone except my husband but I think the strain of all this is too much for him as he is worried sick too

we have a daughter aged 12 and she's all I can think about 

thank you for your comfort and support I really need it right now x 

Hi Lucy,

I hope that you enjoyed your short break, although I'm sorry that you have had to come back early. Still, I'm sure that you were glad to do this to get your MRI and biopsy so soon. The wait is always the worst time, so you'll be glad to get your tests out of the way. Don't forget to ask when you are likely to get your results, after both procedures are carried out. Quite often you are left waiting for a phone call, but have no idea of when to expect it. Even if you only get a rough timescale, it gives you something to count down to. 

It is natural to think the worst at this stage - we all do. Fortunately, it seldom comes to pass. It is hopeful that your care team are not too concerned about these lesions, and I sincerely hope that they are right. I found that talking to some of the support groups helped. The one at the hospital also had a lot of useful literature. I shall be thinking of you tomorrow and keeping my fingers crossed.

Kind regards,

Jolamine xx

Thank you Jolamine

Awake on and off last night and up early this morning. Feeling nauseous as usual but keen to get this done today but then the real worries start whilst waiting for results. I already have an appointment for my results on 21st April but hope they may bring this forward if they come back sooner. I'm not sure how long after that I will be having treatment but will ask. 
 

my mum fly's out on holiday 3rd week of April and I think I may have to tell her before she goes incase I have surgery whilst she is away or she may not want to go. This will then open the gates for my sister and others to know but really hoped to have these results back before I spoke with them

for me this is one of the hardest things as I know they will all be so scared like us and seeing them upset is only going to add to my distress. What an awful situation this is. I haven't looked at the booklet how to talk to children yet but I have some time between my appointments today so will do this then

thank you for you thoughts and well wishes 

lucy x 

Hi Jolamine

good day today

no biopsy required in right breast as no change since my mammogram so it's def benign !

mri done and I saw the radiographer who requested a further mri and she said the area near my spine is almost def a neuroma and nothing to worry about but a further mri was requested to show further up the spine towards my neck to be sure that there is nothing more. She confirmed my lungs and spine are clear and this suspected neuroma appears to be in the muscle tissue 

she also checked my left breast and lymph nodes again and said there has been no change there 

Im feeling so much relief and now and just want to get on with this treatment on my left breast

I know we still need the mri results to be absolutely sure but I am feeling much more positive after today

xxxthank you again for all your support xxxxxx keep you posted x 

They found a benign lump on my wife too when giving her scans for the BC they did know about, behind her chest bone. It did turn out to be nothing.

We had it explained to us that if everyone was scanned, a high portion of people would have some sort of incidental finding. A doctor once told me something similar years ago. He said if you go looking for lumps and bumps, you'll probably end up finding one somewhere, as cysts etc are so common. That was after me finding a lipoma (fatty lump) on my arm.

One of my mates also got told he had a small cyst on his brain after having had a scan after a clash of heads. Had been there for years supposedly. But many of us will never ever know we have stuff like this.

Hi Lucy,

This all sounds like good news. When you've not been having any bother with your back, I expect that they'll just leave your neuroma alone. I have a lesion on my ovaries which was discovered during my investigations, but we've left that alone with no ill effects in the past 12 years. Did they do the second MRI for your back, or do you still have to have this done? It is good that they are being so thorough. It is fantastic news that everything else seems clear and that there is no change in your breast - this should be a great relief.

Have you told the your consultant's secretary that you are willing to take a cancellation if your results are back before 21st? There are still a number of people cancelling appointments due to Covid, so it's always worth a try. It is also a good idea to write down a list of questions to take with you. I usually go armed with 2 copies - one for my hubby and 1 for myself. He writes down the answers as I ask the questons. Most people forget the bulk of a conversation before they leave the hospital grounds, so this ca be helpful. You will also find that your husband may think of questions, which don't occur to you.

I hope that you have a little more to go on before you have to tell your mum. You will find that the more positive you can appear about the outcome, the better family and friends will take the news. I hope that you manage to read that booklet today and that you find it of some help in telling your daughter. 

It sounds as if you should soon be able to start your treatment, which is great.

Kind regards,

Jolamine xx

Hi Jolamine

yes I had the mri on my back too yesterday and the lady who did my ultrasound on my right breast reported in the first mri and is also sure it's just a neuroma and nothing to worry about

i had planned to tell my mum this morning as she has a holiday booked in 2 weeks and will need time to decide if she wants to go or not as it may be my op may fall then if the mri comes back as they think and there is nothing to be done with the area in my back. I would prefer to wait until I have this confirmed before I tell her as she will have the extra worry on the mri results like us but don't want to give her this news just before she goes away. 
 

I will call the clinic today and see when they expect to have my mri results and go from there. I am on holiday with my daughter this week and would like a couple of days with her not thinking about this so will probably tell mum towards the end of this week  or later depending on when the results come in. It's so difficult as keeping this to myself is causing me to stress also so I know I will feel better once it's out there but l I'll e you say have to have myself right and all the facts if possible before I tell mum 

Thank you for your advice on a cancellation appointment, I hadn't thought of this but will ask when I call today. 
 

lucy x 

Hi 
Thank you for your message

it is good to hear your wife's lump was benign, I hope mine is too, they seem confident it is. 
 

It is so scary as you automatically think the worst and the waiting for results is agonising 

 I hope your wife is doing well, thank you for your message, I find this forum really helpful and supportive, it's good to know there are people out there who have experienced the same and are not up close and personal so you can really express how you feel. 
 

best wishes and thank you 

lucy x 

Hi Lucy,

I hope that you managed to get through to the clinic today and that they were able to give you a timeline. It is usually best to ask your consultant's secretary, as she will be the person who arranges his timetable and will know exactly what his schedule is for the next few weeks. She may even be able to give you some indication of when your surgery is likely to be, which would be helpful for telling your mum, as I suspect that this may already have been discussed at the MDT (multidisciplinary team) meeting.

I hope that you and your daughter enjoy your time away together and that the Easter weather warms up a little for you.

Kind regards,
Jolamine xx

Hi lucy 

Sorry too meet you here!

Just wanted to say that I'm 38 young family and was shocked in October to receive BC diagnoses.

I was 20mm Invasive Ductal Carcinoma stage 1, grade 3, high grade DCIS, Lymph Neg, HER2- Oestrogen Positive 

I since have a lumpectomy and got clear margins after 2 Surgeries, they removed 2 main lymph nodes too check them for cancer which is standard as they looked clear on my ultrasound but always check 

I have just finished 6 rounds of chemo and start Radiotherapy in 3 weeks.

When I had my original biopsy it was a grade 2 so I was told just radiotherapy' but after surgery it was upgraded to a grade 3 hence the Chemo plus my age. I will have Tamoxifen for 5 years and an injection too suppress my ovaries as it's oestrogen sensite.

My Tumor was sent too America for an Onco score, this came back low risk but due to the Grade and ny age Chemo was suggested, I was upset at first but thought I would do what ever it takes.

I used the Cold Cap and the Chemo was very Do-able. 
 

I hope that you MRI results are good, it sounds positive.

As anything you need too, along the way and I can always try and help.

You have got this! Just a bump in the Road xx 

Love Sarah 

Hi Sarah

Thank you for your message and for sharing your experience with me. 
it is encouraging and reassuring that BC is so treatable and mine does at this point appear to be a favourable one but it's still so worrying waiting for results and surgery then analysis of surgery and results on lymph nodes

I really hope I don't have to have chemo but like you say we have to do whatever it takes don't we?

im due to return for my 2nd mri results on Thurs as they found an area in my back, this is worrying me so much as I don't know what it is although they think it is a neuroma so needed to be confirmed with a 2nd mri. I think if I have the all clear on this and my surgery booked I'm going to feel a lot happier and then will only have to worry about what comes after

thank you again for your support it helps so much x 

lucy

Hi Sarah

Thank you for your message and for sharing your experience with me. 
it is encouraging and reassuring that BC is so treatable and mine does at this point appear to be a favourable one but it's still so worrying waiting for results and surgery then analysis of surgery and results on lymph nodes

I really hope I don't have to have chemo but like you say we have to do whatever it takes don't we?

im due to return for my 2nd mri results on Thurs as they found an area in my back, this is worrying me so much as I don't know what it is although they think it is a neuroma so needed to be confirmed with a 2nd mri. I think if I have the all clear on this and my surgery booked I'm going to feel a lot happier and then will only have to worry about what comes after

thank you again for your support it helps so much x 

lucy

Hi lucy 

Gosh waiting for results is torture, so hard. You will find that this part of your journey is the worst. Once you hv all your results and plan on the table you will feel much better. Our minds tend to go to the Dark and think up so many different Scenarios.

Have you been assigned a breast care nurse? mine has been wonderful, going through things with me and supporting when I've had a moment. ( I've had lots ). It's when I think about the children. 

I hope Thursday you get good results and you can get a plan in place, don't be disheartened if plans change slightly as your journey goes on.

Your team will look after you and you will be okay, you've got this, xxx

Much love Sarah 

Hi Sarah

yes it's the waiting that's so painful. I am so strung out and need to share this with my mum before she goes on holiday at the end of this month but want to wait for my results on Thurs so I know what I am telling her and not ti worry her anymore than necessary but I feel I need to speak with her before Thurs so she has time to get her head around all this and decide if she still wants to go away or not as my surgery may come while she is away, I'm not sure how long it takes to get booked in but I am keen to get it done asap as it's been nearly 2 months since my biopsy and diagnosis

This is like living a nightmare as it's not over until after surgery and tissue tests to ascertain exactly what and how bad this is and then treatment can change. I just pray it is straight forward and smooth for my family's sake. At this point I don't want my daughter to know but ultimately she will have to know I need an operation and treatment after but I don't know how much to tell her as she is so young and has just started 2ndry school

i am trying to rest and take care of myself so I'm as fit as I can be going into this but I feel sick all the time and find it difficult to sleep 

thank you again for you well wishes, I know I'm not alone and I am humbled by how brave some people have been and only hope I can be the same

lucy x 

Hi Lucy

I have sent you a Friend Request will Pm you xx

Hi Sarah

sorry I haven't got this 

Did you send on Facebook? 
lucy x 

Hi Lucy, 

I know Snow-drop hasn't replied just yet, but I just wanted to let you know that if they did send you a friend request on here, you can use our handy guide to find out how to accept the friend request.

You can also find out more about private messaging and adding friends just here.

I hope this helps, but if you have any questions, don't hesitate to get in touch.

Kind regards,

Steph, Cancer Chat Moderator

Thank you x 

Hi Lucy,

No I requested you on here. Was going too PM you.

Let me know if you have worked it out xxx