I know how you are feeling.  I will be having a throat biospy in the coming weeks.  I was told my appt could take up to 6 week to arrive which doesnt bear thiniking about.  Every moment of the day I am lost in thought of what may lie ahead.  I feel ike I have been carved out inside... hollow  , numb and unable to communicate with others.,, people speak to me and I am not even aware,  I am so closed up inside my own head.. 

Sleeping is so hard.  I did actually download an app for mindful meditation and relaxing, which I  must admit , it did acutally distract me and send me to a better more relaxed mindset and I fell asleep to it .  Annoyingly it is only free for 28 days so looks like I may need to invest for the long time frame I know is ahead .. if my biospy takes 6 weeks and my results 2 weeks I have another 2 months of this . :neutral:

Oh my that is such a long wait. Hope you get it done sooner, it is so difficult when they find something and I feel it's the not knowing and the wait after biopsy for results is the worst, I agree you cant function or turn off no matter how much you try. I have everything crossed for you that it is quick, good news and you have a speedy recovery x 

That sounds better, once you've had your MRI hopefully biopsy appointment is quick. Will definitely download some of the apps x

Also , with regard to pain relief you could also join the macmillan online group as many there will have had experience and I too may be needing help for pain relief after mine .

if you are not there already , here is the link

community.macmillan.org.uk/
 

x

Brilliant, thank you so much x

Quick update, I am seeing my constant on Tuesday, fingers crossed I get my results and all is well.

Glad things are moving on for you .  I hope all is well and you are on a speedy track to a remedy 

x

Still got a really sore throat from biopsy but not as bad as before the antibiotics. Now I've got a date to see consultant I'm very nervous and my anxiety is through the roof, but at least it's been really quick for me, from seeing my GP, seeing consultant, having biopsy and hopefully get my results all within 5 weeks. Thank you for your kind words. I will post an update when I know the results. Wishing  everyone else that's waiting for procedures and results the best of news x 

My biospy is on the 7th March following  my MRI on the 5th .  Can I ask , were you automatically given  stronger strength painkillers after your biopsy ? Or did you have to request them , I am a little worried as sometimes I cant speak to a GP for days .  I guess your antibiotics came about after too and not something automatically given?   
 

I have no doubt you must be on tenter hooks and I know for sure I will be going do lally on the lead up to recieving the results .( I am already having regular meltdowns pre tests)   I really think results  should be given over the phone so you can be in the comfort of your home and surroundings  but then I assume there is some obvious reason why this does not happen that I am oblivious to  

Morning, I'm sorry to say after my biopsy the hospital gave me nothing for pain, I had biopsy done on the Thursday under GA by the Monday I was seeing my GP with the infection where I got the antibiotics and painkillers, I'm now 11 days post op and still finding it difficult to swallow and it's still quite painful but nowhere near as bad as it was. I'm dreading tomorrow but also can't wait as hopefully I will get answers and be back in control of my life. Possible don't give results over the phone due to confidentiality. Good luck with your surgery and I have everything crossed for a positive result for you ♥️

Uff ! I will be sure to monitor mine closley before the fweekend arrives following my biopsy as my local surgery is closed at weekends as are most I imgaine .  I hope your appointment is early tomorrow .  My ENT was late in the day and they were behind schedule so the waiting room scenario for me was not the best  x  I will be thinking of you *hugs

My appointment is at 15.40 so pretty late on in the day. I would definitely advise keeping an eye on your biopsy site and any problems you can go back to the hospital, I chose to wait until doctors surgery was open on the Monday, big mistake!!!! Thank you so much, will be thinking of you too and sending huge hugs back x

My appointment is at 15.40 so pretty late on in the day. I would definitely advise keeping an eye on your biopsy site and any problems you can go back to the hospital, I chose to wait until doctors surgery was open on the Monday, big mistake!!!! Thank you so much, will be thinking of you too and sending huge hugs back x

Hi,

I have just been diagnosed with tongue cancer last week and I am scheduled for a biopsy on 21st March...I had an MRI scan last Friday to make sure it hasn't spread to my chest and I am beside myself with worry over the results.......I burst out in tears uncontrollably when I think about it....the waiting is unbelievably stressful and as much as I try and stay busy as soon as I stop it hits me like a train.....so many 'what ifs'...this is living hell and so hard to cope with

Alan

Oh Alan I am so sorry to hear that and praying your other tests all come back clear. It's the not knowing that I'm finding hard to deal with but hopefully I will find out one way or another later today when I see my consultant. It's easy for other people to say don't think about it, stay positive etc but until they have been in this situation themselves they will never understand the fear, the fact that it is constantly on your mind, you can't function like before, you are worn out but can't sleep and are trying to stay strong for your loved ones, your life is turned upside down and inside out and there's not a thing you can do about it.
Sending hugs x

Dear `Alan , such shattering news .  My heart goes out to you.  I always thought that a diagnosis of cancer could only be given through a biopsy having been carried out but it seems you have yet to have your biopsy  so sometimes I get so confused...  I have been referred for investigation via the ENT department and I have my MRI on Saturday and a biospy on this Monday coming , no-one in ENT  mentioned cancer to me but of course I know this is what they are looking to determine with their tests  especially when i was given a 2ww urgent referral.  SupeC is right , only those who are living in this limbo know the utter torment .  On another note,  a friend/work contact of mine is post tongue cancer treatment 4 years now and he has offered me his support on what may lay ahead.  He said it is  damn tough at times but it is all do-able and rather then see the road ahead as one massive hurdle think of it as small hurdles daily that you take one by one  , some will be hard some not so ...    

Thank you both so much for your kind words....the surgeon told me that in his experience he is 99% sure it's cancer based on the MRI and what he saw...I guess I'm still clinging on to that 1% hope that its not but my body is saying something is very wrong. It was so unlike me to actually do something about it (typical man!) But I'm hoping I have caught whatever it is early enough...speaking to people like you will help us all get through this nightmare.....then oh boy am I gonna live life!....please both of you keep me posted on your progress and the best of luck to all of us x

I haven't had an MRI surgeon looked at my throat and that was it I was in and biopsy taken within the week he did say that it looked extremely abnormal but like you say we hold onto the hope. Today is day 12 since surgery, still sore and in pain but getting there, make sure you have plenty of pain relief and plenty of soft food, if you feel anything like I do after biopsy you will need it, also for first 5 days I couldn't tolerate ice cream, it was like trying to swallow fire hurt like hell. I agree keep us updated and best of luck ♥️Xx

Yes indeed, speaking to those in the same scenario really helps in what feels like a lonely time even when you are surrounded by many.  I have been bracing myself for the worse, if it is cancer, then so be it , I will fight it come hell or high water as long as I have that option of course.  Seems a few weeks back all my worries were non existent , a niggly sore throat nothing major, only now,  in just those few weeks,  the lump is bigger , painful and I even find it hard to speak .. I did mention to someone shortly after my ENT that  my specialist may have knew it was highly likey to be cancer but avoided saying it to me , they look at these things day in and day out ..  

I now see the world through different eyes , I feel cut off and detached from every day life , such alien and consuming feelings. and thoughts . I am absolutely here for anyone who needs to talk too  ️

Omg that last paragraph of yours sums up EXACTLY how I feel!!

Stay strong everybody x

You are in my thoughts right now - have everything crossed for you ️

Thank you, ♥️

Well that didn't go as planned, results that were there for my throat were inconclusive, they found a polyp on my right vocal chord but I didn't ask if they had removed it. So I still have to wait to find out. Really fed up and my head is battered. X