MDT meeting complete and all seemed to happen at once..  My radiotherapy mask is being fitted next Wednesday followed straight after by a CT scan.  Then blood tests ready for my PEG surgery the very next day.  

They said treatment normally starts a week or so after the mask fitting , so they thnk it will begin 3rd May , the day after my birthday lol.... lucky ole me lol .. 

It is nice to see action at last .. daunting times ahead but its a ride i have to take and all I have to remember is it will end ..  

x

Good that the ball is rolling and the sooner you can get started the sooner it's all over. Will it be GA for the peg surgery? 
 

Oh typical. There's never a good day for these things though. Don't be drinking too much ha! We are supposed to move house on the 3rd may. Will be thinking of you.

I'll be here for a chat anytime you want to moan or talk about things xxx

Oh apparently I will be heavily sedated but not knocked out .. she said i wont really remember anything and it is over very quickly .. 

oh house move is so stressful ,, exciting but hectic 

We intend to go out for a meal the weekend before and I probably will have more drink than I should , but whilst I can eh

I will be looking out for an update from you tomorrow too 

x

Oh that's good - better than GA. 
 

you deserve it! Hope you have a great time. 
 

hope your PET scan is going well. Just had a call from hospital to say my results aren't back so appointment moved to next week. Typical. X

another week waiting for  you grrr !  
 

I am presently sat in a comfy armchair in a liitle room hooked up to a drip for my radioactive glucose ... scan wont be for an hour or so though 
 

x

I know! I had a funny feeling it would happen when they said they'd not got them on Monday. Hopefully it's nothing too bad though after speaking with doc about my mri, so trying to think positivity.

how does the drip feel? And have they said when you'll get the results? X

All done and dusted and we managed to squeeze a walk in around nearby woods when we got home .

I didnt feel a thing with the drip, they took some blood did a small flush of saline water which just felt cold and then 15 minutes of the Kryptonite stuff haha .. PET scan is certainty quiet compared to MRI - i nodded off as it was so slow 

The results go straight to my consultant who I do get to see next week so i guess if there is anything ontoward she will tell me then - the only niggle I have is maybe my neck lymph nodes but the glands under my ears are definetly reactive at the moment.  I am not sure if its from stress or just my body trying to fend off the cancer - my consultant  did say they may simply be reactive but if it was spread they were easily treated at the same time as my throat 

Long weekend to look forward to now but my chap is working tomorrow to make up for time lost over the past few days 

Do you have anything nice planned over Easter? 
x

Aww lovely - it's been nice and mild today hasn't it. Hoping for a nice warm weekend. We were up all night with our wheezy toddler last night so spent the day on the sofa. Think this weekend may be a write off now too which is not ideal as we have a house to pack up! 
 

Ah doesn't sound too bad! I hate that saline flush they do I always nearly faint! Glad it's over! Did you say you see your consultant on Tuesdays? 
 

ah I hope it's just the stress! The amount of stress you'll be experiencing must be a shock to the system so you'd expect glands to be up wouldn't you. Fingers crossed that's just the case.

what do you have planned for Easter? X 

Ah , always tough when you have poorly young ones.. the best way to catch up is to sleep when they sleep even if its during the day time.  it gets easier when they get older and can deal with being ill better.  

We dont really have any plans, it will probably be a weekend like anyother but I do think the weather is supposed to be very nice ,so we will probably work on the garden and zip out for a few walks etc. .. 

Felt pretty *** yesterday evening , I think I took too much codiene and it makes me feel really out of sorts , it tackles pain but has it own downside.  The ENT department rang me yesterday evening and told me to up my codeine to 60mg 4 times a day,, but yikes it made me feel awful. .. 

I have been told that when my therapy starts the constant pain I am experiencing should stop when  therapy kicks in as it acts quite quickly shrinking and killing the cancer so I may have a few weeks where I feel better before the therapy side effects kick in and I get a whole new load of problems lol . . to be painfree and feel like the old me for just a week or two would be bliss even if it is for a limted time.. 

Hope your little one is feeling better today

x

Yes she's had such a tough time with her chest over the last year bless her. Just hoping she will grow out of it and it won't be asthma. 
 

Oh sorry to hear you're still in so much pain! I wasn't a fan of the codiene either, made me feel like I was constantly swaying! How come they have asked you to up it? That would be good if you could get a few weeks in pain free, I will keep my fingers crossed for you. 
 

hope you've had a nice day in the garden! Been beautiful weather. I need to get onto my weeding tomorrow but it's one of those jobs that seem impossible to start but not too bad once you get going ha x