ENT appointment - I suspect cancer of throat

I have Elhers Danlos Sydrome, which affects my esophagus, so am only on blended liquids and have been for about 10 years.
In January 2022 I developed pharangeal swallowing issues and soreness. Today as I write this I am about to go into a ENT appointment (actually in a few hours) in which I strongly suspect I will be diagnosed with cancer of the throat as soon as they take a look.

I have soreness in a specific spot on right hand side. Can feel a scab or roughness when I swallow. Have specs of blood in my spit - more so in the morning.

My last hope, though I think it is in vain, is that my coughing has cause some damage.

I am underweight due to my other health issues, so I am doubtful that any treatment would be offered. I have also noticed some more fatigue and headaches in the past 2 or 3 months. All bad signs I think.

So, in essence, I am about to find out if I am going to die a lot sooner than imagined.

My wife will be there with me, but has just lost her father to another sort of cancer, so this will be really hard on her.

Reaching out in there for any support of experiences that may give me some strength.

 

 

  • That's absolutely brilliant you're approaching the half way mark! Keep going!! Ah jo I'm So sorry to hear you're struggling, try to stay strong and keep that lovely positive mindset you always seem to have! Hope you're able to enjoy your garden and the weather in and amongst. Have you started on the peg? 
     

    im good thank you. I got my results back finally yes, they came back with nothing to worry about which I am beyond grateful for. Can't remember the name of it. Thanks for asking. Sending lots of love to you xxxx

  • That is such wonderful news and deep down I had a hunch all was going to be okay for you, but didnt want to tempt fate by saying so ..

    Yes , I must admit the time goes quickly.  I guess having appts everyday makes it so full on you dont get time to think how much has passed .

    Yes , spent a lot of time in garden at the weekend , hopefully I can stay pottering about , it is starting to really come awake now .

    Hope you are all settled in your new home too ️

     

  • Hi jo - just wanted to check in and see how you're getting on! Been thinking of you lots and sending lots of love and support your way! You're so close to the end now! Hang in there xxx