Oddly , i have had two lots of antibiotics since this begun and each time they have eased the area .  I even had some left over from previous , only two days worth but i took them and yes the pain eased .  I tried explaining this to the consultant 2 weeks ago and he simply said but it is not infected , I know this but he dismissed any offer , I dont think he understood .

I suppose i could try and speak to my GP see if she understands and as I am now a cancer patient and get a call the day I need her.

Wednesday I meet at the hospital where I will have my treatment , so I meet the radiotherpay team, a dietitiian and a speech therapist .

I woke at 3am lastnight , was still awake at 4:25 , not so much fretting just unable to sleep so I listened to some meditation and mindful breathing programs lol ... oddly they do distract me 

x

Oh well that's good! No more waiting around for gp appointments! Might be worth seeing if you could get some more maybe, can't harm. 
 

ah ok - good luck with Wednesday - you'll have to let me know how you get on. The meditation in the night sounds like a good idea - I should try that one. My mind just goes into crazy mode in the night though I don't know where I'd start with trying meditation. 
 

Hope you're having a nice day and enjoying the sunshine! X

Yeah give it a try.  I use the Calm app,, and go the sleep section where there are meditations to listen to. its normaly gentle music or water, waves etc and you are guided by a soothing voice into focusing on your breathing and parts of your body , relaxing.  It keeps your mind away from other thoughts and normally I fall back asleep before the session reaches its end ..I use it every night now to get to sleep and when I wake up in the early hours.  There are stories  too but i dont tend to go for them.  Again its  worth a try , if it doesnt work , they are free i think , though because i use mine so much,  I paid for a yearly subscription and got lots of extras. .

Yes we went walking this morning and tackled the garden this afternoon.  

Let me know how it goes if you do manage to get through to your consultant tomorrow? 

x

Didn't manage to get through to consultant but spoke to the receptionist and she said my results are not back yet so the face to face appointment letter is a mistake. 
 

back to square 1 and just praying these results get in soon! Hope you are doing ok x 

uff!  sounds a bit like my scenario..  I was given an appointment date  the day I had my Biospsy. for 2 weeks ahead.   When that date came around and after travelling all the way to the hospital and waiting I found out there was no result back but the consultant did tell me he knew it was cancer from the MRI but he didnt know how deep and what tissue was affected which could mean surgery pathway but he assumed for now it was squamous cell carcenoma  ..  I  was told to come back in the following Tuesday because apparantly biopsy results only get dealt with one day a week, so went all the way back the next week, waited 2hrs 15 minutes to be seen and told they were not back.. it looks like they book appts assuming the results will be in .. they then said come back next Tuesday and I was like,  nope ,, hold on.. you can call me if the  results are back next Tuesday and if it is sqamous cell carcenoma then surely i dont need to come back to be told that there is no change and no deeper tissue affected, they actually agreed as they could see i was such a state after waiting from 9: 45 to 12 to be seen.  

Have they cancelled your appointment now.. ? did you ask if you could be called when the results are in?  How long have you been waiting , i assume it is two weeks as that was my first waiting period after the biopsy ? 

I wonder what they would have said to you when you arrived on Thursday ? the system is a little glitched if you ask me :(. Have you had anyone talk about your MRI etc? 

x

Gosh that sounds stressful! They really do need to work on the system being better as stress for no reason when you're in this situation is really not good. Did you get asked in for a phone appointment or a face to face appointment originally? 

They have told me it will be a phone appointment on Thursday which will be 2 weeks after the biopsy. No one's spoken to me about my mri results no. I think I will call again tomorrow and Wednesday to keep checking x
 

I would have been so upset on Thursday if i had gone in to say there were no results back. 

No, it didnt seem that a phone call option was possible.  I dont know if that was specific to me because they had seen the MRI and knew it was cancer ..  it seemed they just wanted me to keep attending every Tuesday for the final outcome .. once I reminded them that I was  already aware it was cancer via first appt and the consultant referring to the MRI image only,  they accepted  a phone call could be given if the cancer stayed as they assumed from the MRI as to be honest i was refusing to go in a third time and take that risk .

At my hospital , pathalogy results are only discussed early on Tuesday and my constulant is only at my hospital on Tuesdays too so if the result was not back on that Tuesday , there was an automatic wait to the following Tuesday, my biopsy result took 5 weeks in the end .. 

The fact you have a telephone call is promising as they surely wouldnt give bad news over the phone 

x

That's the same for my hospital except it's only Thursdays the consultant is in. I've just rung again to see if they had looked at mri scan as forgot about that earlier and she said she would let me know - will ring again later. Gosh these nerves are unbearable!  X

Yes, sometimes you just have to push the limts and be a pest ... 

How is it healing for you now ? are you still struggling to eat? 

My chap made a gorgeous spaghetti bolognese lastnight , but we put the bolognese sauce in the blender as the tiny bits of mincemeat really aggrevate my biopsy area.. spaghetti is no issue as it is so slippery and slides down ..

Hope I may get to eat a Sunday dinner next week but will swap roast potatoes for mash and over cook the veg a bit . lol

X

Keep me posted ..