My mum's cancer

Hi there, I'm new to the forum, this is my first post. I've found the forum as was looking for somewhere to talk about what my mums going through at the moment, and to find support from people who may have understanding of all this.

Basically, my mum was diagnosed with small cell lung cancer in October 2021. The tumour is in her lower right lung and is approx 5cm. It has also spread to the lymph nodes at the top of her chest, sitting like a saddle over the tubes where they seperate and lead to the lungs. She's struggled alot to eat, and more recently has been struggling to drink liquids too. She's been having chemotherapy since November which originally reduced the size of the tumours a little but they've stayed the same on more recent scans. 

Mum has been prescribed build up drinks as has lost a few stone in weight (she only weighed around 9 stone to start with so didn't have much to spare). She spent Xmas day and the few days following in hospital due to not being able to drink liquids at all. It turned out she had thrush in her throat which was affecting her ability to swallow alongside the swelling in the lymph nodes pressing on her oesophagus. The prescription for thrush has helped a bit, and she's been able to drink again. Getting fluids in hospital was also good for her.

A couple of weeks ago mum had a gastroscopy, where they found a different swelling in her oesophagus, and took a biopsy. We've since found out its another tumour. The consultant has said the cells look a little different to those in the lung and lymph nodes, so may be a new cancer. The mdt will meet to discuss this, and she'll probably have radiotherapy. She's had more fluids and another prescription for thrush meds to help her again this week after once again struggling to drink.

Mum is going into hospital on Tuesday to have a stent fitted in her throat. We're hoping she will be able t orestart chemo again soon, as it needed to stop for a little while due to her being dehydrated.

I'm not really sure what I need to ask or want to know, but I guess I'm just looking for any insight or knowledge you guys might have in terms of what to expect. Are there things I could talk to mum about for future - ie, if the stent doesn't work as hoped, is a peg feed a next step? The consultant hasn't given a prognosis of any kind, I guess we might get one after more chemo and perhaps radiotherapy. It's a little tricky as I live about 4.5hrs away from mum and dad. My brother does live fairly close to her, so she does have nearby family support. I've dropped down to 2 days per week at work so I can visit to support when I can, and attend appointments with her when needed. I'm trying to be as positive and forward thinking as I can for mum, but it all feels quite negative and I can't see a good outcome in the future just now.

Thanks for reading. 

  • All I can do is send a huge hug for you and your mum, it's so hard for you all. I know nothing about that type of cancer, I had breast cancer. Really hope all goes well with your mum. 

  • Hi F0rceField and welcome to the forum.

    We're sorry to hear about your mum's diagnosis and the difficulties she's been having with eating and drinking. I really do hope the stent she is having fitted today will help but if you or your mum have any questions about this and what to expect moving forward then you're very welcome to get in touch with one of our cancer nurses on 0808 800 4040, Monday - Friday between 9a.m - 5p.m.

    I hope some of our SCLC members will share their experiences and advice with you soon but in the meantime, we're thinking of you both and sending our strength and support your way.

    Kind regards,

    Steph, Cancer Chat Moderator

  • I can't help with a lot of the things you are asking but a couple of things I can maybe help with. 

    My BIL had thrush as a side effect and it also caused him not to be able to taste things. Which in turn made him loose his appetite. Try to make sure that is kept under control. Taking photos if it is visible so you can record improvement/deterioration may be helpful. If your mum can access a dietician they may have alternative nutritional ideas to offer?

    Please don't freak out at the mention of this. Our local hospice has many other services they offer which are aimed at improving quality of life. My MIL would not be told and was offended every time they called her up! I do wish she had entertained their calls. I am sure they would be able to sign post you to services that would help. They often have support groups for family members too.

    Lastly, don't neglect yourself, you can't do everything.
    Best wishes to you all x