Partner has metastasied uveal melanoma

Hello

I have been with my partner 10 years but we do not live together as it would never have worked with my children.  He has no family in thi country, they are all in Mexico.  He is very private (he has issues with house keeping and won't let me help) so he won't let anyone visit his flat.  I am the only person he will share anything with.  I have a part time job and am supporting him at my house during the day when I am not at work.  He will only stay over when the kids are with their dad at the weekend.

He wants to believe he will be okay.  He has taken his first immunotherapy session and it hit him badly physically.  The next session is early Feb.  I can't get the day off and dare not let my boss know how bad his care arrangements are  or I won't get the promotion to full time that I desperately need since the HMRC mistakenly believe I earned 160 000 last year (I work in a library) and are pursuing me for money.

I don't know how badly the next round of immunotherapy is going to affect my partner.  I don't want to have the conversation that he ought to approach St Christopher's or McMillan as he needs to believe he is going to get better and I have to pretend that he will.  If I suggested otherwise I feel like I would be breaking his heart and his spirit.  I feel that if I leave it long enough he will figure it out for himself.  However I saw my father go through the same and he believed he would get better up until he died.

What do I do now?

It's so creepy at work.  My colleagues know and clearly don't know what to say as we spent the whole morning in silence.  I don't want to put this on my daughter who is 21 and has recovered from emotional problems. My sons wouldnt understand and it would upset them.  Talking to people at church is out because that's where we met and he has only last week let a couple of people know.  I would have to keep up the act with them that he is okay.  It's easier not to.

  • Hello Bromley_Mum and a warm welcome to our forum, 

    It does indeed sound like your partner is a very private person and that you are the person who is closest to him at the moment, the only person he can confide in probably. I hope that his next immunotherapy session goes well and that it doesn't cause as many side effects as the first one. You know your partner better than anyone and what would be the right approach to support him and encourage him through treatment and as you say it is important for him to focus on his treatment and not anticipate the worst. You obviously went through a traumatic experience with your dad and this is always probably at the back of your mind. 

    All you can do I think is be there for him which I am sure he very much appreciates as you are obviously the person he feels he can trust the most. I can imagine it is awkward sometimes trying to talk to others about it, whether it be your colleagues, people at your church, your sons or your daughter and this is why this forum can be a great place for you to offload knowing that what you are saying will not fall on deaf ears, that others here know exactly how you are feeling at the moment and are aware of the challenges you may be facing.

    Many of our members will have been in a similar place before having had to support a partner through advanced cancer treatment and I hope that they will be along shortly to share their experiences with you. 

    There is also the cancer nurses' helpline which could prove invaluable to you or your partner if you ever wanted to talk things through with them or if you had any questions about his treatment for example. You can call them on this free number 0808 800 4040 and their line is open Monday to Friday from 9am to 5pm.  

    I hope that this next immunotherapy session goes well for him and that the treatment proves successful. 

    Best wishes, 

    Lucie, Cancer Chat Moderator