Tongue Cancer

Hi

MRI on Monday at my request as convinced I have tongue cancer on the lateral edge of my tongue at the back. What looks like a cluster of pink raised papillae that sometimes gets sore.  When I look at them in a magnified mirror they look like they have a white ring around the base.  I've seen an ENT consultant twice since October and although he said everything looks fine with my throat, (discomfort when swallowing), I don't think he looked at my tongue thoroughly.  Since March last year my neck on the same side has been painful on and off.  There are no palpable lumps. Over the past couple of months, the pain in my neck has spread and I even feel it on the left side now, and sometimes at the base of my skull.  It's definitely not muscular.  My doctor only recognises and treats the anxiety that comes with my worry.  A few months ago I also had a week of very weird experiences of dry burning heat running from my armpits across my chest, in my groin, across my shoulders, down the front of my body.  All happened within a week, during the night.  Really freaked me out.  Doctor again said anxiety.  I still get discomfort under my right armpit. Last week I asked the doctor to look at my tongue and she said it looks normal.  I made her look again as it really doesn't look normal to me. 

If it's cancer, and if it has already spread to my neck glands, right and left, and possibly even further, then I'm assuming it's game over.  My other worrying thought is that it is HPV related.  Without going into details, it is a possibility.  At the time my neck started to hurt, I had been suffering with eustachian tube dysfunction and some infection.  The worst earache I've ever had that lasted 3 months.  My immune system was very low at that point.  I've done some reading up, and I'm fearing the worst.  Assume that I've had this going on since March last year.  Plenty of time for things to get worse.

Kingfishers

  • Hello Kingfisher66, 

    I just wanted to wish you the best of luck for your MRI tomorrow. I can completely understand why you are feeling so worried about it and why you would want to get this properly looked at. Hopefully the MRI tomorrow will shed some light on what is going on. Try in the meantime and while you are waiting for results not to worry too much or anticipate the worst as there are so many things it could be other than cancer. 

    The best thing to do to avoid thinking too much about this is to keep busy and distracted if you can and avoid looking things up online. I can imagine it is hard for you to do this at the moment but it will help you feel a little less anxious. 

    I hope you will also hear from others here who have been through all this before and that they will be along soon to share their story with you. 

    Keeping everything crossed for you that everything turns out fine. It's good you're having this MRI and I hope that it will give you the reassurance you need. 

    Best wishes, 

    Lucie, Cancer Chat Moderator