One positive sentinel node

Hi

Was diagnosed on 17th November with a 15mm grade 1 IDC, had surgery on 9th December, lumpectomy and sentinel node removal. Results on 29th December, one margin not clear with 15mm DCI and one sentinel node out of 4 positive for cancer cells. More surgery scheduled for 13th January and now grade 2. Having re excision  and full lymph node clearance.  It's knocked me backwards and was wondering if anyone's had anything similar.  It's  ER + Her2- 

Jules

  • Hey Jules. I had a lumpectomy and sln removal on 2nd December.  At my follow up I was told the breast is clear of cancer but the one node they took has cancer cells in it so I'm now awaiting a lymph node clearance and ct scan. I'm stage 3 now apparently too. She also said I'd be needing chemotherapy now. I'm absolutely devastated and can't process all the information and the thoughts in my head are driving me mad. Its a horrible disease and I'm struggling.  Wishing you lots of love and luck. Donna x

  • Hi Donna, I have had a similar experience. I was diagnosed in September with grade 2 IDC to my right breast, so shocked I have to say, just didn't expect it. It was ER positive, HER negative too.

    I had a lumpectomy and node biopsies done, came back as grade 3 with no positive nodes luckily. However, unfortunately the tumour has eroded some of my vascular vessels and from the pathology examination post surgery they now say it has some HER positive cells and I now need chemo. 
    I am having a echo and PICc this coming week then to start chemo the week after.

    I am absolutely all over the place and devastated just like yrself. I can't imagine how I will get through this at the moment but all I know is we have too, we have little or no choice.

    I am the same as you, the thoughts are dreadful! I have thought everything imaginable and all doom and gloom. I have to give myself a shake and get back to reality because at times my mind is really running off with me which is doing me no good at all.

    I think the most helpful thing I am finding is going out of the house to be distracted, I'm dreadful if I stay in.

    can I ask how old you are hun? I'm 58 in a couple of weeks but never dreamed I'd be spending this birthday in this situation.

    If you find any tips for coping please feel free to share! And I will too.

    Good luck with yr journey and keep yr chin up, we can do this 

     

    love Kiera xx
     

  • Hi keira. I don't feel I have enough information.  I don't know all the fine details like you do, I wasn't given that information so I may call the hospital on Tues. I was told things like could have spread to lungs, liver etc hence ct scan. Have to clear lymph nodes to see if it's gone further. And chemotherapy. Ct scan Friday but no dates for anything else. I feel helpless. I'm 56 and this has come out of the blue. X

  • Do you have a breast care nurse? If so maybe she can answer some of your questions or explain when details may be available. Do you know if your cancer is hormone receptive? If not then maybe she could explain this to you.

    Obviously they can only give you results after each test but after my lumpectomy my tumour was examined by a pathologist which resulted in the different grade and then it was sent to America for another test which the results together changed my treatment. 
    Are you a grade 3 rather than a stage 3 as this can be confusing?  
     

     

    love Kiera xx

  • I can't answer that as I don't know if it's hormone receptive. I remember the words double positive? And I don't know if its grade or stage 3? She said it'd aggressive...I do hsve a breast care nurse who I'm going to call as I feel so under informed now xx

  • I really think you should to help get things clearer in your mind, I would be stressed if I didn't know what was going on my dear!

    Hope you get the answers you need lovely. Here if I can help, keep in touch and let me know how you get on if yr happy too 

     

    Love Kiera xx

  • I'm totally confused by it all. I'll call my bcn and ask all of the questions.  Will come back when I have answers xx

  • Hi Donna

    It is so horrible and knocks you for six. I am trying so hard to process all the information but finding it so difficult to come to terms with it all. Cried loads the last few days and feel really angry. 

    What's changed that you're grade 3? I've been told grade 2 now after initial grade 1 diagnosis. 

    Also wishing you lots of love and luck. Do you have a bc nurse to talk to?  Luckily mine are brilliant, very understanding.  

    Jules X

  • I don't have all the information so I'm feeling frustrated now. I'm going to contact my bcn Tuesday.  I'm in turmoil like yourself xx