Please share your memories with us

Hi everyone

We’re currently working on a project here at Cancer Research UK and we would really appreciate your help. We are looking to gather some of your memories of how cancer affected you at different times, for example; what do you remember about the day you received bad news or even good news from your consultant? How did you feel during the time you were waiting for results?  Whether you or someone else was the patient we really want to capture your significant memories.

These are some of the things we’re hoping you can tell us about. We’re not expecting you tell us about everything but if there are one or two key moments you feel you could share, then we would love to hear your stories :

1. When you first noticed ‘something.’ That first awareness that something wasn’t quite right.
2. Did you share your concerns with anyone? What was that point when you acknowledged something might be wrong?
3. Your memories of that first appointment.
4. Going for tests
5. Waiting for results
6. What can you recall about getting the results? Maybe it wasn’t the bad news you were dreading?
7. Telling loved ones “it’s cancer”. How did you share the news with friends and family
8. Coming to terms with having cancer
9. Coping with treatment
10. Are you living with cancer or perhaps you’re trying to get back to normal? Are you coming to terms with the loss of someone close?
11. What is life like now? What are the thoughts which are uppermost in your mind

Thank you for sharing your very personal memories with us. We promise not to share your personal details with anyone outside of Cancer Research UK without contacting you for permission first and will never disclose your personal details with anyone else.

Sarah

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  • Hi Sarah ..... what is the project your are doing and what will it be used for?   I hope you dont think that I am being pedantic but when you say our stories wont be shared outside of CancerResearchUK - anyone anywhere can access the site and read them surely or am I being dim?  Max x

  • Hi Max, we are looking at using quotes to create a narrative of a patient journey through cancer. Sometimes it's more powerful to understand from hearing people's stories than for us to just explain the processes involved. We have no specific campaign in mind as yet but would hope in the future that we could - with your permission, produce something which we could publish and share more widely. I should have said we wouldn't share your personal details (I have now edited this). If we do want to quote you or share your stories we will always ask your permission first and they will remain anonymous unless we had permission from you to use your real name.

    I know what you mean about forum content being public, but I wouldn't want you to ever think we would take what you have shared on Cancer Chat in good faith and suddenly find it popping up on Facebook or on the side of a bus.  We would always ask if we wanted to share anything you post on the forum anywhere else. I hope that makes a bit more sense and once we have something more specific in mind we will let you know.

    If anyone wants to email us privately please do so at cancerchat@cancer.org.uk

    Thanks

    Sarah

  • Thank you Sarah - did make me smile imagining our quotes on the side of a bus!  I'm sure Brian and friends could think of some apt and witty ones for that if you change your mind and decide to put some there lol!  Love to all x

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