Dad dying alone in hospital - pancreatic/biliary tract cance

Hi all,

It's not like me at all to reach out for support and I'm supposed to be the "strong" one in my family, so posting here is a big step for me.

Dads currently in ICU where he has been for the last 2 weeks. He was diagnosed with biliary tract cancer in May and has many underlying issues. He had 2 laparotomies in the last 2 weeks (following bladder damage from previous cancer 10 years ago) which means his chemo has been put on hold, and it's the reason he's still in hospital. We got told today that the cancer has now advanced to a stage where palliative chemo is no longer an option and he is in his final days/weeks. He doesn't know yet and has been fighting so hard up until this point. I can't even begin to put into words how deeply painful this is. He's in so much pain following the laparotomies, from the pain of the tumour itself in his liver and he is so jaundiced just looking at his yellow eyes brings me to tears. The most difficult thing is coming to terms with the fact that he will most likely die in hospital alone, without anyone with him. We have such a huge family and he is so loved by everyone, and we can only visit for an hour per day and it's just tearing me, my brother and my mum apart that he's just left there to suffer in pain by himself.

Has anyone else been in a similar situation? Not being able to be there and watching a loved one slowly deteriorate from afar without being able to hold them or be there for them? I feel so helpless and alone and my family relies on me to be the pillar of strength. I can't even imagine the fear and sadness he will be feeling there all alone.

Parents
  • My darling father left us early this year, 6 weeks after diagnosis. I kept it together until he was no longer with us. He had bile duct cancer and I can't believe we never knew. My heart was shattered into billions of pieces and that is still the same  now. Within a month he became seriously ill and we were told it would be days, weeks but unlikely months. Within two weeks he was not here and like you we were not really able to see him when in hospital.  He wanted to come home and we arranged that and I looked after him with help from Marie curie, my angels, and district nurses.

    I tormented myself with how he was feeling, but now I know I will never know. I told him every day how much I loved him. 
     

    I am not sure that writing this will really help you, but just felt I could not scroll by. 
     

    The best advice I got, is be kind to yourself.

Reply
  • My darling father left us early this year, 6 weeks after diagnosis. I kept it together until he was no longer with us. He had bile duct cancer and I can't believe we never knew. My heart was shattered into billions of pieces and that is still the same  now. Within a month he became seriously ill and we were told it would be days, weeks but unlikely months. Within two weeks he was not here and like you we were not really able to see him when in hospital.  He wanted to come home and we arranged that and I looked after him with help from Marie curie, my angels, and district nurses.

    I tormented myself with how he was feeling, but now I know I will never know. I told him every day how much I loved him. 
     

    I am not sure that writing this will really help you, but just felt I could not scroll by. 
     

    The best advice I got, is be kind to yourself.

Children
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