Hello Buckeejit and welcome to Cancer Chat! 

I am so sorry to hear about your mum. It's so sad that things have suddenly deteriotated so much for her and that she has lost her mobility and her eyesight. It's so kind of you and your brothers and their wives to have been there for her and to have organized a rota to support her. I can imagine though that this has been truly exhausting for you. 

I hope that you will hear from others on the forum who have looked after a loved one with glioblastoma and that they will share their experience with you and tell you whether they also witnessed these long sleeping patterns.

Perhaps you would like to talk to our nurses about this? Don't hesitate to give them a call on this free number 0808 800 4040 - their line is open Monday to Friday from 9am to 5pm. 

We're thinking of you and your family during this difficult time. I hope you manage to take some breaks and recharge your own batteries as it's can't be easy for you all at the moment.

Best wishes, 

Lucie, Cancer Chat Moderator

Still here more than a month later & feels like this is never going to end.  

Struggling with how relentless the caring is & feel so bad for my heartbroken dad & my children who have been neglected for months & guilt over being spread so thin.  Not sure why I'm posting but I don't feel like I can truly talk to anyone in real life & I just want my mum to die now.  I don't see any point in her being here. She has no value of life & we're lucky if she says 10 words a day. it's just so sad. I'm dreading Christmas & feel like all this sadness is seeping into my bones.  I have no idea how people cope with being carers for  years on end.

Thinking of everyone else struggling & in pain.

Hello,

i just want too say how sorry I am that you are going through this. I lost my Dad is September to Gioblastoma so I know exactly how you are feeling. 
 

I am 38 and my Sisters and I helped my Mum care for him until he passed away. My heart was broken and still is. When the time came it was quick and peaceful he had a Syringe driver for the last 2 days or so. 
 

I am thinking about you! Life is so Cruel. I hope your getting lots of support. My Dad unfortunately lost his memory the last few weeks of his life but strangely that was a saving grace. 
 

I am so sorry for you and the family, I also have children and I felt the same as i dedicated the last 3 months too him and my Mum and so did my sisters. I felt for the children but I am so pleased I did what I did.

lots of love x

Thank you so much for replying snowdrop & I'm so sorry for your loss.  I know we won't have any regrets after this, it just feels like   It's going on forever & emotions right now are like weather, I don't know what's coming next or how long the rainy & stormy bits will last.

ive spent a long time listening to the grief cast podcasts lately. They might not be for everyone but I've found them strangely comforting

Yes it's really hard, such a terrible illness! It's like a bad dream. Your experience is different to mine in the Sense that it was probably only the last month of Dads life that he slept more and more. 
It must be so hard for this time to have lasted this long for you , seeing a loved one like this is a feeling you can't describe and no one really knows unless they have experienced it first hand. 
 

I remember when we were first told about my dads illness and I went too the Dark, imagining all these scary things that could happen and thinking that I would never be able too cope! It frightened me. 
 

You and your family are so strong but I feel your heart brake. No knowing when it will end is completely horrendous and I am sorry your going through it xx