Husband might be home for end of life... useful equipment?

Hi all,

after speaking to a hospital doctor on the phone today, there's a small glimmer of hope that my husband will at least be able to come home from hospital for his last weeks. It's called "compassionate discharge" (no, nothing to do with the military!).

Hospital is trying IV fluids to get him a little bit out of lethargy, apparently he hasn't even been out of bed today. If they have no serious immediate concerns, they might decide though that he's stable enough to be at home for now. And drum roll: I'll be allowed to visit him for the first time tomorrow... I argued that I really need to see him to judge how much support we'll need from the district nurse/hospice. And I get to talk to two of the doctors while there.

From what I'm told, my husband's mobility has gone downhill. Until last Monday he was still able to stagger round the house, even upstairs to the main bedroom, but that seems unlikely now. He's eating & drinking small amounts, but gets a cough after eating.

I know we'll definitely want a hospital bed here (although I could hump a normal single bed downstairs). We already have a toilet frame and a shower chair, thank goodness the downstairs shower room has a large shower cubicle with almost level access. We've also got an over-bed table. We should probably consider a commode, as the shower room is a good 15 metres away. I've got a blender stick, so I can puree food if required.

Now just wondering what else you find (or found) useful?

Parents
  • Hi Lowlandcow,

    I am so glad to hear that you were getting to see your husband yesterday and hope that you were able to accept the change in his health since you last saw him. Was your chat with the doctors of any help? They should be able to contact the people who can provide any equipment you may need. 

    Whether or not you'll need a commode will depend upon how much your husband's mobility has changed. The doctors should be able to tell you this. They should also be able to arrange any build up drinks or puddings if he is not eating much.

    I do hope that you manage to get him home soon and I'm pretty sure that he will be as happy to be home again, as you are to have him home. You are facing a very tough time. My thoughts and prayers are with you both. We are always here for you.

    Kind regards,

    Jolamine xx

Reply
  • Hi Lowlandcow,

    I am so glad to hear that you were getting to see your husband yesterday and hope that you were able to accept the change in his health since you last saw him. Was your chat with the doctors of any help? They should be able to contact the people who can provide any equipment you may need. 

    Whether or not you'll need a commode will depend upon how much your husband's mobility has changed. The doctors should be able to tell you this. They should also be able to arrange any build up drinks or puddings if he is not eating much.

    I do hope that you manage to get him home soon and I'm pretty sure that he will be as happy to be home again, as you are to have him home. You are facing a very tough time. My thoughts and prayers are with you both. We are always here for you.

    Kind regards,

    Jolamine xx

Children
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