Hospice care

Has anyone got any advice about having to go against a loved ones wishes and put them in a hospice for their final weeks? My mum wants to pass at home but it is becoming increasingly unlikely that me and my sister are going to be able to manage her care between us much longer as she detoriates 

We have visits from carers 4 times daily but they are elderly carers not specialist palliative carers and seem intimidated by how unwell mum can be. We have been offered 2 night sits per week but after 4 months it's getting to the point she needs 2 people to manage her basic care needs and we can't both be there 24/7.

We want to carry out her wishes and are pretty devastated that we probably can't but we would also like some time to just be daughters again and not her carers before she's gone. 

  • I'm so sorry that you are all going through this.  I'm sitting at my Mom's beside now watching her slip away. I've been caring for her since her terminal diagnosis in April this year. Like you, my Mom wanted to stay with us and we wanted her to stay with us too. Mom has a driver now and heavily sedated so seems peaceful - it's been a very difficult few days though and she has been distressed and in pain too many times. Although the community palliative team have been v good, having gone through the experience I wish Mom had gone into a Hospice.  Unless someones end of life symptoms are managed well and there is a strong palliative care team available 24/7, the end is so unpredictable. I would determine what palliative nurse support is available to give medication at nights and weekends so your mom doesn't suffer. If this is limited e.g. 1 or 2 days support each week, I would explore the hospice route a little more. My Mom 's condition deteriorated on Friday but unfortunately the community team don't work after 4.30 each day or the weekend. It has been challenging getting the meds needed resulting in mom suffering and it causing significant distress for her family. This is my 5th night sitting with her and I'm exhausted with tiredness and concern for my wonderful Mom. We were provided with a great specialist  nurse last night who was able to react to moms condition when needed and administer medication. It was a god send as she had a very difficulty night. Apparently this support can only be provided once or twice a week. I'm frightened that moms going to become restless and agitated again tonight and I can't relieve her suffering. The distress is unimaginable.

    If I could turn the clock back I would have determined what support was available if needed and by whom - as you mention carers can only do so much. My only option should mom struggle again tonight is to call the out of hours GP - even though palliative care patients are treated as a priority, it could take 2hrs before they arrive. I don't want my Mom to suffer any more than she has already. If she was in a hospice the challenges getting the appropriate medication promptly would not have arisen. As you mention you could spend quality time with your Mom in a wonderful caring setting with support on hand when needed. 
    My very best wishes