Secondary brain cancer

Hi all,

 

I can't even believe I am writing this but unfortunately I have recently just had the heartbreaking news to say my beautiful mum has this awful brutal illness and it's terminal.

 

It literaly has smashed my heart into a million pieces  and I don't know how I am going to keep fighting once I lose her, I will of lost everything I know it  


So when I got the diagnosis she was with me, however she is very confused due to the brain mets & I honestly don't believe she understands that she has got this and is living on limited time? Is this normal or could it just be that she doesn't want to go down that lane of conversation? 


She honestly speaks about how well she looks now and how hard the past weeks have been ? I mean she does look amazing to me of course and it's been hell but she's still fighting the hardest war of her life and unfortunately going to loose & I feel like am not telling the truth & at the same time I don't know if she could process it or it would really upset her I wouldn't want  either  


There currently reducing the meds for the swelling on the brain & we're taking every day as it comes with greatfulnes BUT I really don't know what to expect next & I have tried researching as much as I can but I feel like maybe I need to speak to people who have been through this or similar to kind of understand better.

 

My mind is ticking over & over everything so I am sorry if this doesn't make sense in parts but if anyone could let me know or share anything similar I would be so greatful


Thank you so much for reading xx

 

Parents
  • Hi. I can feel your panic through reading your message. Please if you can just take a moment for yourself and try to focus on anything that can calm you, even if it is just for a second. I am so sorry that you are suffering. My Dad died yesterday morning. He had stage 4 Glioblastoma. Since April I have been desperately researching, reading forums hoping for anything to stop my Dad from leaving me but also to stop the excruciating fear and panic in me. Over the last two weeks I decided I had to let everything wash over me and not fight it. Just accept the reality of what was happening. Acknowledge that it was all too much but that it was ok not to be ok. It became for me I am here with my Dad in this moment. I love my Dad and he loves and knows I am here with him. He will leave me but I will be with him when he does and I will be just there in that moment for him. Whatever fears I feel for after he's gone I will get help and deal with then but will not allow them to overwhelm me now while he is still here. He is not here now. He left me yesterday. I was by his side when he died. I just wanted you to know that writing this tonight I am doing ok and know I will be ok because I want to be and my Dad would want me to be. I am sending you both a big hug. 

Reply
  • Hi. I can feel your panic through reading your message. Please if you can just take a moment for yourself and try to focus on anything that can calm you, even if it is just for a second. I am so sorry that you are suffering. My Dad died yesterday morning. He had stage 4 Glioblastoma. Since April I have been desperately researching, reading forums hoping for anything to stop my Dad from leaving me but also to stop the excruciating fear and panic in me. Over the last two weeks I decided I had to let everything wash over me and not fight it. Just accept the reality of what was happening. Acknowledge that it was all too much but that it was ok not to be ok. It became for me I am here with my Dad in this moment. I love my Dad and he loves and knows I am here with him. He will leave me but I will be with him when he does and I will be just there in that moment for him. Whatever fears I feel for after he's gone I will get help and deal with then but will not allow them to overwhelm me now while he is still here. He is not here now. He left me yesterday. I was by his side when he died. I just wanted you to know that writing this tonight I am doing ok and know I will be ok because I want to be and my Dad would want me to be. I am sending you both a big hug. 

Children
  • Hi there,

     

    Oh I am so sorry to hear about your dad & I am sure he will be so so proud of you xx

     

    I hope your okay and big hugs to you, you sound like you have been through similar steps of how I am feeling now with looking into everything and feeling so scared of when the time comes.

     

    I do everything I can at the minute to enjoy the time I spend with her and I feel so blessed & greatful for this time but like you say and your so right I am literally in fear day and night of what's to come. I suppose I have never lost anyone close or been through this before & now it's hit the most amazing & important woman to me it breaks my heart into pieces.

     

    I hope my mindset will be strong and something clicks because at the minute the thought of my life without her is just unbearable. I am glad I found this forum though I felt some type of comfort straight away. I appreciate you sharing your story and thank you so much for your kind words.

     

    I really hope your feeling ok & if you ever want to chat please do, big hugs xx

  • I am so glad you have found this forum. I joined for the same reason, it does provide a little comfort. This is a whole new horrendous experience for me too, like you. Remember nothing needs to click into place, you don't need to be strong. Just take everything minute by minute and look no further than that if you can. This us my second full day without Dad. This morning I felt desperate, this afternoon I just feel numb. The absolute terror I felt Sunday and yesterday has given me a day off today. Today I am ok. xxx