Quality of life

Morning...I would like some other options on this topic please anout my dad.He is getting chemotherapy to keep tumours he has on his liver at bay not to cure him.He is very tired and has little appetite so as a result does not really go out anymore.My mam is finding his lack of wanting to go out as no quality of life and is wondering what is the point of receiving chemotherapy but my sister and I think the opposite that its keeping him alive .What are your opions ...does he have quality of life or not ?

  • Hi Amrc & greetings from a sunny London.

    My ability to get out and about has deteriorated dramatically since my diagnosis in April (bile duct cancer). I'm now unsteady on my legs and often too tired to even contemplate leaving the house. 
     

    The thing is, it's irrelevant whether I still consider that I have quality of life (I do, but that may well change). What matters is whether your Dad feels he has sufficient quality of life. Surely he's the only person who knows the answer and whose opinion matters?

    I hope this response doesn't come across as critical in any way. It really wasn't meant to. 

    Very best wishes to your Dad, to you and to your Mum. 
     

  • Good morning...thank you so much for your reply.I can totally understand how you find it hard to get out and about anymore...I see it all of the time with my dad.I do believe like you that life is life but my mam is finding it very hard to accept that dad cant get out really anymore. I do believe if Im honest that she is being very selfish and in a way making my dad feel guilty that she has to stay in with him...so as a result that is a lot of arguing and its not fair on my dad.She nearly thinks that hes being lazy on his good week before his next session of chemotherapy. Its so hard to listen to sometimes and I feel so sorry for my dad having to listen to my mam.In her head hes no quality of life because he cant do anything and sleeps a lot.He goes for his next scan in September to see if the chemotherapy he has got since March is doing what its supposed to be doing so its a terrible worry.I try to get my dad to speak about what he is going through but he wont so Im not sure to ne honest if hell go through chemotherapy if its offered again and him listening to my mam isnt helping.I wish you all the best on your cancer journey and hopefully you get the results you are looking for

  • Hi sorry to read about your dad.

    I'm currently on a 3 weekly chemo program and I get 1 good week where I can go out however I lose part of that week as have to isolate after my covid test which is so frustrating. Mid Aug I will go onto weekly chemo for 3 weeks and the 4th week no drug. I have no idea how it will affect me. I do get very low as want to be doing things, I don't see people as family don't live close and friends all busy working so my days drag. My partner works long hours and for his own mental health I have insisted he continues with his interests. He just had 2 nights away for golf it was my good week so I was hsppy for him to go. He thoroughly enjoyed it. He also practices in a band once a week.

    Can your mum be doing things without your dad so she it gives her a break.

    Only your dad can decide if he has a quality of life and if having the chemo is worth it. It is very difficult to go through treatment as people don't understand how your feeling etc. 

    Wishing you all the best in this difficult time.

    Louise 

  • Hi thank you so much for replying It certainly is hard for everyone involved.You sound like a very strong person and I really do pray that you get the outcome you are looking for after going through chemotherapy...it is so hard to watch someone going through it so I can only imagine what its like physically and mentally to actually be the one going through it.Mam will do stuff on her own but then we all hear about it and having to do everything herself. She lives about 40 minutes away from me so unfortunately I wouldnt be able to see them ever day with work and kids They were supposed to be going away with other family members for 3 days but I really don't think hes up to it so I suggested maybe she go.on her own and dad could come down to my house for the couple of days so well see I suppose shes saying no at the moment but maybe shell change her mind.I even asked her would she move closer to me and my sister because we live close ,but she wont.Id love to be able to see and help them everyday