End of life

My sister is currently with me at home in a hospital bed.

She has Glioblastoma (brain cancer) we was told by her oncologist she has anything from 2 weeks to 3 months to live. 
It will be 2 weeks this Thursday, my sister is getting no better, she more or less has every tick on the list of end of life, the strange thing is she always is ok when she wakes in morning for a few hours , then the rest of the day she sleeps and has non stop seizures, breathing difficulties, confusion, lack of appetite, it's so cruel all this.

Mu question is, do I ring the hospice for advise, and would they arrange transport to the hospice if needed? As she is non mobile plus double incontinant too.  
 

thanks for reading x 

Parents
  • Hi, i looked after my husband at home till the end, that is where he wanted to be. He was very strong and determined till the end which made it easier, 2 days before he went he was still crawling down the hallway to get to the toilet cause he didn't want to 'be a bother'. Towards the end the hospice came round to the house and put in a catheter, not sure if this is an option,  she sounds bedridden? The hospice should definitely be involved, they can give a lot of advice, ours was doing home visits for us but I'm not sure what happens these days, that was at the start of covid and during lockdown. They wouldn't come much because of that but the district nurses were our heroes,  they came every day to fill his pain pump and helped me enormously,  when they were concerned they rang the hospice themselves for advice from the drs. You definitely need help, it's finding the right channel. I also had my mother-in-law move in to help me with him and the children, would've been much harder alone, is there someone who could be with you? Don't be afraid to use the hospice if you're struggling, that's what they're there for xxx

Reply
  • Hi, i looked after my husband at home till the end, that is where he wanted to be. He was very strong and determined till the end which made it easier, 2 days before he went he was still crawling down the hallway to get to the toilet cause he didn't want to 'be a bother'. Towards the end the hospice came round to the house and put in a catheter, not sure if this is an option,  she sounds bedridden? The hospice should definitely be involved, they can give a lot of advice, ours was doing home visits for us but I'm not sure what happens these days, that was at the start of covid and during lockdown. They wouldn't come much because of that but the district nurses were our heroes,  they came every day to fill his pain pump and helped me enormously,  when they were concerned they rang the hospice themselves for advice from the drs. You definitely need help, it's finding the right channel. I also had my mother-in-law move in to help me with him and the children, would've been much harder alone, is there someone who could be with you? Don't be afraid to use the hospice if you're struggling, that's what they're there for xxx

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