Sorry I started this reply yesterday but G needed me.  Thank you so much for your lovely kind reply.  Our Family and Friends are very special and have helped us without question.  Macmillan dont work in our town ss ee have a local hospice. Weve had a small bit of support in tel calls and visits when Ive needed to discuss meds.  We had a male nurse for a few weeks in April and he raised Gs steroids to help symptoms then he moved jobs in the hospice and so we got a lady who came a couple of times, called a few times and talked but nit helped more than that.  Would you considrr G coming into the hospice for a planned admission at some point as we dont have respite service and wont in near future? Yes when he needs more help of course.  As you know been strughlingand doc asked the nurse is there anything you can do to get G in? Are thereany respite?No sorry we do have planned admissions? Yes we do planned admissions.Do youhave beds available?

No not at the moment. We can put G on our list. How long will he wait? Dont knowits quite a while at the moment.

Well what can I say. He's staying here then andthats that.  Youre talking in front of G but not with him or to him.  He was distressed enough and because hes not in pain, no pain receptors in the brain, and no one will give him anything to calm him down hes so low and sad.  Still trying to get the prescription for liquids meds as he sometimes he has trouble swollowing them and they stick to his tongue, they are big.  We will just do what we need to for G for the next week or whenever he goes.