Hello Maria1965

I am so so sorry that you and your husband are going through all of this.

I lost my husband nearly 5 yrs ago sometimes feels like yesterday and other times like such a long long time ago.

I feel your pain and fear.  Distressing beyond words what this awful illness is doing to your husband and so heartbreaking for you to watch.  I really hope the morphine has the pain under control.

I don't know what to say but wanted to offer you my thoughts and hugs and to let you know your not alone.

virtual hugs and all my thoughts take care x

Hi Leigh

thank you so much for your kind words and support.he is on quite a high dose but the pain is not at a comfortable level for him so the nurse is coming tomorrow.

Im so sorry for your loss,it's absolutely heartbreaking to watch the person you love go through this.

thank you once again for your kind words.

xxx

Hello Maria1965

Good to know the nurse is coming tomorrow and i hope that really helps him.

Thank you for your kind words also, sadly there are so many of us gone or going through this devastating illness.

I hope others come and offer you support too.  

Vierual hugs and thoughts of you both 

xxx

Hi Maria

I've  never posted on here yet but felt the need too, my dad was diagnosed with lung cancer in January and then subsequently sinus cancer too..we were told it could be treated but then during intense chemo/radiotherapy he got sepsis and the cancer took hold of him in Feb and of recent told there is not much else they can do apart from treat the pain. 
 

nor sure about you but no one prepares you for the actual amount of morphine they go through or will go through til the end as every week the levels creep up, my dad is on 160mg slow release morning and evening then he can have min 20ml liquid morphine when he needs it (& it's increasing)..wish we knew the answers :( like your husband my dad has conversations to people that aren't there or he'll think someone is behind his bed and talk to them and when I question it he'll fob me off like 'oh silly me' sort of thing and roll his eyes and lately he's been jerking/muscle spasm quite a lot which I understand is from the morphine sometimes too. 
 

But just wanted to say I totally understand how you feel as my dad was a complete work-a-holic/never stopped to now just laying in bed all the time and feeling useless it's definitely awful to go through to see such drastic change, but I'm sure you're doing everything you can to make him comfortable/happy as can be! Definitely talk to your palliative care team of everything that's been going on and hope his pain is under control.. stay strong and thinking of you.

take care x

Hi Haze 

Im so sorry for your dads diagnosis.it's an awful struggle at times isn't it.my husband is on 150mg slow release tablets and can have 25mls liquid morphine every hour.

this is increasing every week.i totally get what you are saying about the muscle spasms.these are happening more frequently now.he looks at the wall and starts talking to himself and answering himself and  I feel so sad for him.no one certainly prepares you for this drastic change,totally agree there.

he also has lymphodema so his leg is massively swollen as is his foot,he also has genital lymphodema.

the palliative care team are fantastic.my husbands cancer is very rare and it's now on his lungs too.

I pray he doesn't suffer too much but I can clearly see he is.

I hope your dad can get to a comfortable point as this is what we are struggling with too.

love and strength to you 

Maria 

xxx

Hello Leigh

thank you so much.

I do find myself struggling but this group is an enormous help to me,to chat to people who are going through/have been through the same.

I hope you find comfort in this group too.

sending you strength 

Maria 

xxx