Mum gone into hospice, what happens now?

Hi everyone, my mum has been battling cancer for around 8 years now, started as bowel cancer and more recently moved to her spine and lungs. Chemo and radiotherapy now have no affect on the cancer cells so she has had slowly declining health fir a few months now. The last week she got very very swollen legs, we think as a side effect of her steroids intake being raised. She was taken into a hospice a few days ago at first as a short term measure as she lives alone. She seems to be in less pain now but her painkillers have been upped, so she is drifting in and out of sleep all day now, talking strangely etc. 

What I'm wondering is what happens now? Will the hospice try and lower her painkillers so she can be more alert or leave her as she is? If she's released from the hospice surely they can't release her to a home where she lives alone? I'm not sure if she is in fact dying now or if its the meds they've put her on that have made it seem like she's declined so sharply. Due to covid visits are hard to come by, 1 visit a day so I have to wait until tomorrow until I can go and see her and speak to her doctors. Just a bit lost with it all and probably rambling to be honest but any experiences people have had or knowledge would be appreciated. Before she got sick I didn't even know what a hospice was for so it's a steep learning curve. Thanks 

  • Hello Gary 

    so sorry to hear that your mum is in a hospice does the hospice she is currently an inpatient in allow you to speak with doctors over the phone as I work in a hospice and our doctors speak with family over the phone with concerns. They are the ones caring for your mum so will be able to answer your concerns as they medical involved in management of your mum currents symptom management. 
     

    hope u get some answers 

    Emma 

  • Hi I went through this all with my mum last year. She did home hospice. The district and Macmillan nurses and carers came to our home for a week before she passed away. I was so shocked and confused too. Have they started any morphine? There are two or three drugs that they give via syringe driver to make them more comfortable. It's all very scary and my heart goes out to you

  • Thanks both for your replies. She's been on slow release morphine for quite a long time now as it's in her spine. They have upped that quite a lot to try and keep her comfortable though in the last few days. 

    It just seems odd, I can't tell if it's the medication  causing the swellings and the confusion  or if she has possibly really not got long left at all. Tomorrow is the day I get to visit her so I can ask a load of questions then I guess. Thanks for your responses hope your both keeping well x

  • In fact the only symptom my mum had (until the final two weeks) was swollen legs. We were very naive and told ourselves it was lots of things unrelated to the cancer. In fact we found out in the end that her tumors were pressing on her kidneys, which made it difficult for them to function to remove all the waste amount of water from her body. Hence the swelling was building up in her legs. This all happened during the first lockdown so didn't see any doctors until she went to the ER. It's been a year now - still can't believe she's gone and can't say it's become easier. Just got used to living with the pain. I hope your mum is comfortable - the morphine is very necessary when it gets to this stage even though it makes them seem out of it xx 

  • Hello [@Garyninja609]‍ 

    So sorry to hear your mum has been taken into a hospice, my heart goes out to you, because I know how tough it is to see this.

    I hope when you see the hospice they can give you some answers, but all I can say from personal experience is that they actually angels and took such wonderful care of my mother when she was with them, and I have no doubt they will do the same for yours.

    Sending you lots of love.xxxx