End of life care

My husband is 56 he's been diagnosed with dcbl stage 4 he was diagnosed may 27th last year he's had 2 rounds of rchop 21 which was only palliative he's been stable for quite a while but recently has started having more issues he's at present on a syringe driver with morphine madazalam and levopramazine his breathing has worsened and I have to check he's breathing before I go in the bedroom he wants to pass at home I'm terrified he's going to be in pain he hasn't had any pain so far the driver was fitted to help as he's not eating and barely drinking I'm not after advice I guess I just need to rant sometimes I've read up on everything and I think I'm just overthinking everything I can't see him holding on much longer 

  • I lost my sister last month too breast cancer and it spread to brain,  she was 51. Her family wanted too do her care at home and to die at home . But it didn't work out , it was just too hard for her grown up kids too see. She had  agitation and would often shout out, so was decided that she would get care from hospice , and I have to say it was just amazing.  The nurses (angels as I call them) were fabulous. My sister slept away on 6 th of April at 9.05 pm . As soon as they thought my sister had any pain, even just if she put her hand on her head they would assume she was in pain(because she lost her speech) take care x 

  • Hello Gina74.

    My wife was diagonsed with terminal cancer and given less than 2 months. it turned out to be 6 weeks from when it was diagnosed. due to covid19 we brought her home for end of life care. My wife's aggressive cancer caused a thigh break and a dislodged hip joint. it was decided due to any kind of operation would not help her live any longer than they had said, it was decided to let nature take it's course. my wife did not want to know how long she had left. She had two drivers  as she was on a lot of medications, so we talked about taking her on holidays when Covid19 allowed. knowing it was imminant. it was so hard  to pretend she was going to see Christmas that year 2020.

    What you do not get from reading about end of life, is the real facts. by all means have a rant at me. I know what you are going through. just before my wife passed away on July 12th at 17.15she had stopped eating and drinking, and the body lasts around a week, or thats what my wife's sister said. as she had gone through the same ordeal with her own mother and her husbands parents. So she knew all the signs. She even rang my daughter to say that she needed to be here, as she did not think she would see the day out.

    All that day on Sunday I sat at the bed side holding her hand telling her how much I loved her. my wife of nearly 34 years must have thought I was a stuck record and decided to leave me, just so she did not have to listen to me any longer. If I had one wish I would swap places with her with out a second thought. it's 11 months now since my wife passed away. and even now I shed a tear when I read someone is going through what I did.

    My thoughts and best wishes go out to you and your partner .

  • So sorry you and your husband are going through this.

    I lost my Mum on 7th May and I am still in complete numb and shock stage.  Mum was diagnosed with stage 4 lung cancer in October 2020 and she had a short but tough battle.  She was on a driver with 2 of the same meds and a few others too.  Watching my Mum decline so quickly was the hardest thing I've ever had to do. The Hospice care team were absolutely fantastic and without them I would not have been able to provide my Mum with everything she needed at the end. I will be forever grateful to them. I sat with my mum holding her hand a talking to her for the last 48 hours of her life.  She had stopped holding and squeezing my hand back and was barely coherent with all the drugs but these (I hope immensely) made her pain free as it was just an unbearable thing to watch.  I too started wishing it would all end for her sooner so she was no longer suffering. I have no words of wisdom as nothing can prepare you for what will happen but I take comfort in the fact I did everything I possibly could to be there for my Mum! It's only been 3 days and is Incredibly raw and currently I am unsure how to carry on without her she was only 66 and far too young with a fabulous retirement ahead of her. 3 children and 10 grandchildren to keep her busy, she was taken far too soon! I will forever my Mum and no words will ever describe this pain.
     

    good luck with everything and seek and take support wherever you can get it.xx