Weeks to live but how long?

My father (84) was sent home after a couple of weeks in hospital with an inoperable tumour in the cerebellum. We were took he had weeks to live

what worries me is my poor mum was geared up to thinking we only had a matter of days and seems to want to do everything herself, that was three weeks ago and I worry we could have more long weeks ahead (carers are on hand but she keeps refusing)  since he got home he seems a lot better (some confusion and incontenence and difficulty walking but eating, drinking, sleeping and communicating fairly well) and I worry that him stabilising means his prognosis is inaccurate. As mean as that seems I'm not sure how much longer my mum can cope and just want it to end. I feel so guilty saying that.

what is everyone's experience of brain tumour prognosis? Are the doctors accurate with 'weeks' and do patients tend to rally when they get home and put on all the meds?

 

 

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    Hi Doneoo,

    A very warm welcome to our forum, although I'm so sorry to hear why you are here. We had a similar situation with my in-laws a couple of years ago. My father-in-law was 97 and my mother-in-law 94. He struggled to care for her for 7 years when she was bed bound due to vascular dementia. Eventually, we had to insist on additional help, which he was reluctant to have, but this gave him more quality time to share with his wife, instead of constantly looking to her needs. I must say that he found that having carers in was an invasion of their privacy, but the service they offered was invaluable.

    My own mum had breast cancer which spread to her liver, lungs, bone and brain and her prognosis was very poor at that stage. She did however hang on for nearly 4 months. Doctors cannot predict all that accurately how long patients will live. At best it is a 'guesstimate' and many people live way longer than their pedicted time whilst others pass much sooner. With my father-in-law we were told that he had weeks, but he died within 5 days of his cancer diagnosis.

    Don't feel guilty in saying what you feel. It would all be so much easier if we had a definite time frame. I expect that your dad may have rallied since he was discharged from hospital, as we all feel better at home. This is a lot for your mum to cope with, as I expect that she is around the same age as your dad. Will she accept help from family members or is she doing everything herself? Try to make the most of the time you have left with your dad and don't leave anything left unsaid.

    I am thinking of you all and sincerely hope that your dad has a peaceful passing.

    Please keep in touch and remember that we are always here for you.

    Kind regards,

    Jolamine xx