Hi [@JaniceMe]‍ , I'm so sorry you got such a cruel diagnosis. I think you are very brave and totally right to be making your own decisions about when treatment is or isn't worth it. 

I got my choliangocarcinoma with liver and node spread diagnosis on April Fools Day this year. Similarly to you I've been told, on average, life expectancy 6 months without treatment or 12 months with treatment. Again like you I feel I've accepted my diagnosis. I have treatment decisions to make now and it's tough weighing up what may or may not be worth it.
 

Am sending you strength and my admiration. It's your life and you're entitled to live it on your own terms, especially in such difficult circumstances.  
 

LL xx

Hi so sorry to hear we are both battling something that is such a aggressive cancer yet so silent until we get a few symptoms. What made you go to the doctors? I had a sore throat a couple of months an Xmas day was the last straw as couldn't get my dinner down! Spent ages cooking for the family and to be honest everything does revolve around sitting down with friends or family. Just started cooking cakes during lockdown but can't enjoy them myself. Are you able to eat now without pain?  I haven't had any morphine yet. Stay strong too xx

Hi Janice, I hope you managed to get some sleep after your early-morning post.

What made me go to the doctor's was discomfort under my ribs on the right hand side. My GP arranged an ultrasound to look for gallstones and although they did find a gallstone they also found abnormalities in my liver. It took quite a while to get a diagnosis because they had to find out if it was cancer of the bile ducts in the liver or cancer of the liver. They're sure now it is bile duct cancer (cholangiocarcinoma). 
 

Eating is not painful but my appetite has really shrunk. I've been taking morphine (slow release and oramorph) for several weeks now as the discomfort progressed quickly to pain.

I've got my first Gem/Cis chemo session tomorrow. I can't believe how much my life has changed in such a short time. I can only hope that, like you, I will discover previously unknown reserves of strength! Thanks for lighting the way a bit for me. It does help to know that I'm not alone in this even if our cancers are different.

Rachel

Hi hope Chemo goes not too bad.yes our lives have changed so drastically in such a short time and do not think any of us could ever be prepared for the changes we face in both mental and physical changes. I tried to get morphine patch yesterday but waited all day for a call back but no joy so will try again today. I do feel whirlwind of appointments an support (almost overwhelming for me) but then any follow up I have had to do.,I do understand that departments are busy but it appears we are unprepared for some of the side effects an pain we find ourselves getting. We are told not everyone gets this or that but most people I have talked with do get them but I don't think we get the support from the medical staff doctors etc to deal with them particularly with myself the vomiting and nausea which has meant 3 trips to hospital on a drip which afterwards I felt so much better physically and mentally more able to cope. I really think the strength of cancer patients is amazing but I do feel we all need better follow up to make sure we are coping with our pain or worries. Sending huge hugs to everyone out there  
 

Well woke up this morning and radiotherapy must be working as been able to eat solids without pain. Still got sure throat but nurse has given me prescription to cope with that an I can cope with that. Just had rice and veg followed by rice pudding without any heartburn. Regretting giving away my bigger clothes now as think I might soon fit into them again now can eat normally lol. Take care an keep strong out there x

Celebrated my 65th Today. Went for afternoon tea to a lovely Cotswold Hotel then spent evening overlooking hills at lovely pub. Do feel sad though as seeing what I shall be missing does depress me. My daughters an family an friends are having a get together for me on Saturday so am looking forward to that an although had a few days with chest pains which woke up today an felt really healthy. But counting my blessings I am still here 

Throughly enjoyed the get together my family organised for me and friends at local pub for my 65th. Balloons arcade an beautiful cake and such a fabulous day forgot all about the cancer. Long day an evening an to be honest been tired an breathless ever since. But resting today as off to Burnham for long weekend. Get my results from. C T scan tomo so everything crossed that tumour shrunk an lymph nodes not spread.

Throughly enjoyed the get together my family organised for me and friends at local pub for my 65th. Balloons arcade an beautiful cake and such a fabulous day forgot all about the cancer. Long day an evening an to be honest been tired an breathless ever since. But resting today as off to Burnham for long weekend. Get my results from. C T scan tomo so everything crossed that tumour shrunk an lymph nodes not spread.

Glad you had a great party Janice! Good luck for tomorrow

Thank you Dean. Can't sleep as sometimes I get paranoid about aches an pains. Have had chest pains for a week now an some days feel very tired. Think will be put out of misery one way or other when results are given. My daughters are going to listen into call tomorrow but one daughter tends not to want to accept diagnosis and I know she will push the consultant for more treatment options. Night for now as do finally feel sleepy. Take care x