Hi Janice Me

I was given a similar prognosis in March and have had one round of chemo, my last one was postponed as my neutrophils were really low. I am hoping that I will be having it this week. I initially felt as you do and would have refused chemo had my son not been with me when I was told that without it I had weeks, with it maybe 1 year. Within days of my first chemo I was able to swallow again, my pain decreased so much that I only need a morphine patch and occasional other pain relief, though it has increased again this last week.  I am not ready to die and I will explore every option looking for someone who can potentially offer me more hope. That said, I totally understand your decision and also your feeling of sadness as that is exactly my feeling. 

I am here if you want to talk and sending you a huge hug.

Ly xx

Hi Janice Me

I was given a similar prognosis in March and have had one round of chemo, my last one was postponed as my neutrophils were really low. I am hoping that I will be having it this week. I initially felt as you do and would have refused chemo had my son not been with me when I was told that without it I had weeks, with it maybe 1 year. Within days of my first chemo I was able to swallow again, my pain decreased so much that I only need a morphine patch and occasional other pain relief, though it has increased again this last week.  I am not ready to die and I will explore every option looking for someone who can potentially offer me more hope. That said, I totally understand your decision and also your feeling of sadness as that is exactly my feeling. 

I am here if you want to talk and sending you a huge hug.

Ly xx

Hi finished radiotherapy 2 weeks ago an got side effects day after. Very painful in area of tumour but vomiting was worst an despite nurses giving me injections ended up late at night at hospital on drip. No bed available so very uncomfortable 4 hrs but was able to go home early hours. Felt so much better as had fluids an strong anti sickness put intravenous. Am able to eat more now but throat still painful hence why I am up at 4.30 am writing this. Have had some good days but it's the breathlessness an fatigue that gets me as all geared up to go out to shops or friends then after half an hour feel knackered but again getting more energy each day. Daughter gave me PEP talk about being open to maybe a 3 month break from treatment as mini breaks arranged each month as treats an my 65th Birthday in June an see what alternatives Consultant can offer without so many side effects perhaps even going on a drip straight after treatment as 3 times now I have needed drip. So have promised her I will listen to what is available. Do need stronger pain relief so will be calling doctor. Have Consultant ringing me on 18th May with results from radiotherapy so hope it has strunk. I am not a very tolerant person normally but have come to realise I am stronger than I knew. So keep strong out there x