Mum has terminal lung cancer

Hi everyone, this is my first post here. Not something I wanted to do but this is where I am. My mum was diagnosed with Lung Cancer back in January. She has always been super fit before that. The only sig. We had was she coughed up a little blood and then things snowballed from there. It turned out she had Metastatic Kidney Cancer and now Some small tumours in the brain. She has been managing ok but things seem to be getting worse. She had Srs radiotherapy for her brain mets and that seemed to go ok. We are about 1 and a half weeks later now and she is really struggling. Constantly tired and struggling to get around like she did. She says she's constantly tired and has a lot of aching on her right hand side.

She's not in any pain now we got the medication sorted but I'm constantly worried. I'm hoping she will pick back up again. She had a patch before where she was constantly tired and she came back round to be more active. I'm worried out of my mind that she will keep declining. Could this tiredness be down to the brain radiotherapy. She seemed ok when she had it but she was on steroids. The doctor said 6-9 months then 9-12 if they can get control of the cancer. She is supposed to be having radiotherapy for her lung but I'm not sure what will happen with her feeling weaker. She wasn't so bad only a few days ago and now she is very tired again. I just don't know how to cope with losing my mum. She's my life and I will be lost without her. I've been living with her at home for the past 18 years due to my own illness. We are so close and it feels like my world is falling apart. I know other people go through this but I am struggling. This is the hardest thing I will ever have to do. Muly mum is 65, she still feels so young to me. Thank you for reading. 

  • Hi Laraine,

    I'm so glad to hear that you are doing well now, apart from the tiredness. I'm 13 years down the line, following 2 bouts of breast cancer. I too am doing well, apart from the tiredness and mobility problems. I still manage to lead a busy and fulfilling life and I try to make the most of each day that I'm given.

    Kind regards,

    Jolamine xx

     

  • Hi Lairane, thank you for the kind words. Unfortunately my mum passed away last year. I'm glad that you received the all clear and I hope you keep in good health! Thank you.

    Simon

  • Hi Jolamine, how are you? Everything is going ok thanks. My dad is getting tired now as expected but he is still managing ok. He's had 7 sessions now so still a while to go. I think as you said the travelling is taking a lot out of him. I expect him to get more tired as we go along but he is managing at the moment. Yes the transport is hit and miss, sometimes quite early and other times late, it is all in a morning though so he's usually back by 11:30 which isn't too bad. I hope you are enjoying this hot weather, it's been really warm today hasn't it! Thank you for the kind words Jolamine, I hope you are doing ok. x

    Simon

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    Hi Simon,

    I am glad to hear that your dad is managing ok so far. It's a pity that his transport is so hit and miss. This must add extra pressure on him, which he could well do without. I'm afraid that we haven't had the good weather that you've been having - plenty of rain and high winds are the order of the day here.I'm not doing too badly at the moment, thank you.

    Keep in touch.

    Jolamine 

     

  • Hi Jolamine, did you not have the nice weather, that's a shame. It was really warm for a while, back to normal pretty much now though! I hope all is well. He is managing ok but it's taking it out of him now. I think a lot of it is the transport as you said, some days he can be at the hospital an hour early so he is waiting around. We did have a bit of trouble last week where he was coughing up some blood but they said it can happen. They checked him over and said he's fine to carry on with the treatment. He coughs really hard which doesn't help as he could have ended up doing some damage. The cough is a known side effect from radiotherapy I believe. He has done 14 sessions now so just 6 left. I will let you know how he goes on. I hope everything is ok with you Jolamine, you take care. x

    Simon

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    Hi Simon, 

    Sorry for the delay in replying. My hubby wasn't well this week and we had to call the heart failure nurse. She came out to the house and took bloods, his blood pressure and has referred him for an ECG.  She phoned me today with the blood results and all is clear, thank goodness. She has advised that we reduce the frequency of taking one of his tablets and she will phone us again next week to see how he is coping. This all seems to have come about as a result of putting him on a new tablet to try and reduce the swelling in his legs

    We are still waiting for the nice weather promised this weekend. I am glad to hear that your Dad is managing his treatment, even though it is taking so much out of him. I am sorry to hear that he was coughing up blood last week, but understand that this can happen. It is so good to know that he is almost at the end of his radiotherapy now. I'm sure that he'll be glad to see it all finished.

    Take care and keep in touch.

    Jolamine xx

  • Hi Jolamine, I'm so sorry to hear that. How is he doing now. It is really annoying isn't it when you try and correct the medication and something else goes wrong. I'm glad the results are clear and hopefully he starts to feel better soon. It sounds like you have had a hard time with everything going on. I do hope everything settles down and he feels better. 

    Did you get the hot weather Jolamine, it's expected to be really hot this weekend. I must admit I'm not a fan when it gets too warm. We either get no heat or it's boiling! It's never just right! 

    Thanks Jolamine, yes he has finished now. He finished yesterday, he seems relieved, I think he is too tired to really know at the moment. He does seem to be glad it's done though. I think it's a 3 week wait now before they get in touch about having another scan done. The coughing up blood wasn't nice  but it is something they had told us about so that made it less of a worry. It hasn't happened again so that's a good thing I think. I will do Jolamine, I hope your husband is feeling better. You take care. x

    Simon
     

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    Hi Simon,

    Hubby is a bit better, but still not himself. His blood pressure has risen a little since reducing the dose ofone of his tablets. He is waiting for an ECG and has an appointment at the hospital at the end of this month.

    I am glad to hear that your dad has finished the radiotherapy. I understand that the tiredness can last for some time after the radiotherapy stops, so it will take a while to see what benefit he has had from it. I hope that his next scan shows that it has all been worth it. I am glad to hear that there has been no more bleeding.

    We got to see what the good weather was like on Sunday last week. However, that was just a teaser, as we haven't seen it since. We've had a few heavy showers today, but we're ever hopeful of seeing the good weather back for another day or two. I hope that it's not too hot for you.

    Regards,

    Jolamine xx

  • Hi Jolamine, I'm sorry to hear that. I hope they can get his blood pressure sorted out. It's so difficult when changing tablets isn't it, my dad is like that when they start new medications, it's always difficult to make sure something else doesn't go wrong. I do hope the ecg goes well and they can help him.

    Yeah they did warm us thst the tiredness can happen at any time, I think they said the first 3 weeks there's a good chance of some symptoms. I know these can happen at any time though. It is strange that it's just a waiting game now and hopefully there's some good news down the line. Thank you Jolamine, yes he has been fine since then. 

    I'm glad you did get a little bit of the hot weather finally! I believe we will all be hot this weekend. There's a warning for very hot weather so hopefully you do get some sun! Thanks Jolamine, I like a bit of sun but that does sound too hot for me! I hope your husband feels better soon Jolamine. You take care. x

    Simon

     

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    Hi Simon,

    I hope that your Dad is doing ok and that he doesn't have too many nasty symptoms. I sincerely hope that he gets some good news when he goes back to the hospital.

    We have finally had a few days of continuous hot days, intersperced with light showers and accompanied by a strong wind. This has made the heat bearable. Admittedly our weather is still only in the low 30ies, so nothing like I expect that you have. I hope that you're coping ok.

    Jolamine xx