Mum has terminal lung cancer

Hi everyone, this is my first post here. Not something I wanted to do but this is where I am. My mum was diagnosed with Lung Cancer back in January. She has always been super fit before that. The only sig. We had was she coughed up a little blood and then things snowballed from there. It turned out she had Metastatic Kidney Cancer and now Some small tumours in the brain. She has been managing ok but things seem to be getting worse. She had Srs radiotherapy for her brain mets and that seemed to go ok. We are about 1 and a half weeks later now and she is really struggling. Constantly tired and struggling to get around like she did. She says she's constantly tired and has a lot of aching on her right hand side.

She's not in any pain now we got the medication sorted but I'm constantly worried. I'm hoping she will pick back up again. She had a patch before where she was constantly tired and she came back round to be more active. I'm worried out of my mind that she will keep declining. Could this tiredness be down to the brain radiotherapy. She seemed ok when she had it but she was on steroids. The doctor said 6-9 months then 9-12 if they can get control of the cancer. She is supposed to be having radiotherapy for her lung but I'm not sure what will happen with her feeling weaker. She wasn't so bad only a few days ago and now she is very tired again. I just don't know how to cope with losing my mum. She's my life and I will be lost without her. I've been living with her at home for the past 18 years due to my own illness. We are so close and it feels like my world is falling apart. I know other people go through this but I am struggling. This is the hardest thing I will ever have to do. Muly mum is 65, she still feels so young to me. Thank you for reading. 

  •  

    Hi Simon,

    One of my colleagues worked out the number of patients before I left and it was well into the millions. Still, I'm fortunate in that I've always enjoyed my work and found it very worthwhile.

    Has your dad had his Pet scan results yet? We were at the hospital with my hubby today. He has been very sleepy and had a lot of dizziness and palpitations since he started on his new medication. His blood pressure was also very low today, so they have reduced the strength of one of his tablets until things even out. 

    It is good to hear that your sister is keeping you right with your garden and you can always learn more from the internet, if you want to. You can do so much with the internet these days. We are about to try and learn Italinan this way, as we are going to Italy for my godson's wedding in September. I speak French, German and a little Spanish, but Italian is a totally new language for me.

    I hoope that you are keeping well.

    Regards,

    Jolamine xx

  • Hi Jolamine, how are you? Wow is it really that many, that's a lot of people! No wonder it feels strange for you not being around so many people now! I hope you are getting more used to it.

    We did get the results. It is lung Cancer. It's stage 2 and they said they wouldn't operate because of his health. They said that he can have radiotherapy so he will have 4 weeks of that in a few weeks time. I'm not sure how he will manage with it with all his other illnesses. It sounds mostly like the problems come after the treatment has finished. We just have to hope he can get through it and it helps.

    I'm sorry to hear that Jolamine, I hope your husband is doing better now.  Hopefully he is ok and they have got the medication sorted for him now. I know dizziness is awful so I do feel for him. Hopefully he is a little better now.

    You are right Jolamine, there is so much information out there. You can pretty much learn anything these days. I have been looking at plants. We have a few house plants so I've been learning to maintain them. It's mostly just watering but I have started to pull the dead leaves off now! Ah that sounds really nice Jolamine. I'm sure you will have a lovely time! Do you speak all those languages Jolamine, that's impressive! I believe Italian isn't easy but as you already know the other languages I'm sure you will pick it up quickly! I bet you are looking forward to it! 

    Thankyou Jolamine, I hope all is well with you too! You take care. x

    Simon

  •  

    Hi Simon,

    I am so sorry to hear that you are having to go through this all over again. How is your father coping with the results? I do hope that he can cope with the radiotherapy and that he doesn't have too many problems with it. My Italian is limited to just a few words at present, but I am gradually adding to my vocabulary. I do about 20 minutes every day and it's amazing just how quicklyI'm beginning to pick up a few phrases. We are really looking forward to our trip.

    The other thing that you need to do with your plants is to feed them occasionally. The plant gradually takes the nutrients out of the soil and you need to replace these from time to time in order to keep the plants healthy.

    I hope that all goes well  over the next few weeks. Please keep me posted.

    Look after yourself.

    Regards,

    Jolamine xx

     

  • Hi Jolamine, he seems to be ok at the moment. It doesn't quite feel real yet as he has no symptoms. I'm sure it will become real once he starts the radiotherapy. He has just been today for the first appointment and the treatment will start on the 15th for a month. We will have to see how it goes, hopefully he will manage to cope with it. I will let you know how it goes.

    Wow do you really learn the words that quick Jolamine, It sounds like you have a knack for it! I think after 20 minutes you wouldn't pick that much up but if you do it everyday I'm sure some of it does stick! I'm sure you will be quite good by the time you go! I bet you can't wait.

    Ah ok I must admit I haven't fed the plants. I need to look into that, I have just been watering and they seem to be ok but I can imagine how it helps them and the soil. It's another thing for me to have a look at on the internet! I'm learning bits here and there. 

    Thank you Jolamine, I will do. I hope all is well with you. You take care. x

    Simon

  •  

    Hi Simon,

    It must be difficult to take this in when he has no symptoms. I am glad to hear that he doesn't have long to wait for his radiotherapy. Here's hoping that all goes well for him. 

    Please keep me posted. 

    I hope that you are enjoying this lovely weather for the Jubilee holiday.

    Kind regards,

    Jolamine x

  • Hi Jolamine, yeah I'm trying not to think about it too much at the moment. Hopefully it goes well. He's starting the treatment this week and it lasts for a month so we will see how it goes. Thank you, that is very kind of you.

    The weather was really nice for the Jubilee wasn't it! I hope you had a nice time. It's expecting to be warm again by the end of this week I think. I hope everything is going ok with you Jolamine. I will of course let you know how everything goes. You take care Jolamine.

    Simon x

  •  

    Hi Simon,

    I expect that your Dad is feeling quite anxious at the thought of starting radiotherapy, but I hope that all goes well for him. A month is a long time, when he is not very fit, so I hope that it doesn't take too much out of him. 

    The weather was a real bonus for the Jubilee . We just enjoyed it - got a lot done in the garden and had our meals outside - a real treat up here!

    As you already know, I am always here any time you need to chat.

    Regards,

    Jolamine xx

  • Hi Jolamine, he seems quite relaxed but he's never been one to worry about his health. Even with his diabetes he pretty much ignored it, I sure he is a little worried deep down though but he wouldn't admit it. Yes that's the biggest concern, 20 sessions does seem a lot. With his heath already not being great I'm sure it will be hard. He also has to travel to wythenshae which is about an hour away. They have provided transport to pick him up though which is good.

    It was very nice! That sounds good Jolamine, yeah we don't get many opportunities to eat outside in our climate! We have to take advantage while we can! It sounds like you made the most of it. I believe the next few days will be quite warm too. Thank you Jolamine, that means a lot to me. I hope everthing is ok with you. You take care.

    Simon x

  • Hiya, I really do feel for you, it's a particularly frightening time. I was diagnosed with lung cancer 3.1/2 yrs ago, quite by accident. I had a scan prior to acquiring a hearing aid. However, everything went well from there, fantastic Consultant, quick Op date, successful op, followed by several sessions of intense Chemotherapy, all good results. The physical and mental side were horrendous, but I was still breathing! I have now been 3 yrs 'clear'. I'm 69, constantly tired, following Covid shielding still trying to get back on track. What I'm saying is - yes, she'll feel absolutely KNACKERED, feel like giving up, but she won't do that. Like me she will fight. YOU will worry, my daughters both did, but given present day medicine (and love) she WILL get there if it's meant to be. It's actually tougher for you than it is for your Mum, I know that. But stay calm, love her as she is and listen to the experts, my darling. Hopefully she'll get there. If she doesn't, hard as it may be, you will have done your absolute best. You seem a wonderful daughter, your Mum will appreciate everything you've done. Sending hope, love and hugs.

  •  

    Hi Simon,

    How is your Dad's treatment going so far? It's helpful that they have provided transport for him. but a two hour journey every weekday will take it out of him too.

    Thinking of you both.

    Regards,

    Jolamine xx