Mum has terminal lung cancer

Hi everyone, this is my first post here. Not something I wanted to do but this is where I am. My mum was diagnosed with Lung Cancer back in January. She has always been super fit before that. The only sig. We had was she coughed up a little blood and then things snowballed from there. It turned out she had Metastatic Kidney Cancer and now Some small tumours in the brain. She has been managing ok but things seem to be getting worse. She had Srs radiotherapy for her brain mets and that seemed to go ok. We are about 1 and a half weeks later now and she is really struggling. Constantly tired and struggling to get around like she did. She says she's constantly tired and has a lot of aching on her right hand side.

She's not in any pain now we got the medication sorted but I'm constantly worried. I'm hoping she will pick back up again. She had a patch before where she was constantly tired and she came back round to be more active. I'm worried out of my mind that she will keep declining. Could this tiredness be down to the brain radiotherapy. She seemed ok when she had it but she was on steroids. The doctor said 6-9 months then 9-12 if they can get control of the cancer. She is supposed to be having radiotherapy for her lung but I'm not sure what will happen with her feeling weaker. She wasn't so bad only a few days ago and now she is very tired again. I just don't know how to cope with losing my mum. She's my life and I will be lost without her. I've been living with her at home for the past 18 years due to my own illness. We are so close and it feels like my world is falling apart. I know other people go through this but I am struggling. This is the hardest thing I will ever have to do. Muly mum is 65, she still feels so young to me. Thank you for reading. 

Parents
  • Hi an so sorry to here even though you going through this. I am 64 an live with my daughter an 2 grandsons age 15 an 14. Have 3 daughters who were devastated when we were told I had stage 4 oesophageal tumour an spread to stomach nodes an slightly on liver. Told 3/6 months without treatment or 1 year with. Chemo didn't go well so had to be stopped after 4 days but had radiotherapy an that has shrunk tumour so can eat well now. My grandson 15 isn't coping well at school an I am at a loss what to say to him as he is sad that he doesn't know how long is nan is going to be here for. Try to reassure him I am well at moment. I j is my daughter is on an emotional roller coaster too. 
    I did feel very tired during radiotherapy and had side effects after for 2 weeks. Twice ended up on drip which made me feel so much better an enabled me to fight back. Each day the tiredness has got less an now managing to take dogs for short walk. Hope they can sort medication out to keep your mum comfortable an yes just let her know your there. I will only take one day at a time but I also understand how awful this is for my family to be going through this too. Stay strong x

  • Hello JaniceMe, I'm very sorry to hear you are going through this. I'm glad the radiotherapy worked and you are feeling a little less tired. It must be nice for you to walk the dogs. I do hope you continue to feel better. Thank you for the support, it is a awful time. I don't think you can understand how hard it is until you go through something like this. Nothing can prepare you for the heartbreak you feel. We are trying to get the medications to keep her comfortable. It feels like an impossible task to watch your mum deteriorate in front of you. The most important person in the world who I adore with all my heart. It is so tough. Thank you, you stay strong too and I hope you continue to feel better. X

    Simon

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  • Hello JaniceMe, I'm very sorry to hear you are going through this. I'm glad the radiotherapy worked and you are feeling a little less tired. It must be nice for you to walk the dogs. I do hope you continue to feel better. Thank you for the support, it is a awful time. I don't think you can understand how hard it is until you go through something like this. Nothing can prepare you for the heartbreak you feel. We are trying to get the medications to keep her comfortable. It feels like an impossible task to watch your mum deteriorate in front of you. The most important person in the world who I adore with all my heart. It is so tough. Thank you, you stay strong too and I hope you continue to feel better. X

    Simon

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