Diagnosed with a rare terminal cancer with a poor prognosis

Hi there

2 weeks ago I was diagnosed with a rare metastatic small cell cancer with a large oesophageal tumour and others throughout my peritoneal cavity. With chemo, I have been given a year at best. I am 64, live alone with no family nearby though I do have good friends. I led a very active life and had planned to quit work this summer just enjoy doing all the things I love most.

 I had a first round of emergency chemo which reduced all my symptoms within days and I almost believed that they had made a mistake in my diagnosis. This week the symptoms and pain have started returning leaving me in no doubt that this thing is there and doing its worst.

I have gone through so many emotions, sadness for my family and friends, sadness for the years I won't get with my toddler granddaughter and a new baby due in September, sadness for the long walks I won`t get to do, just overwhelming sadness. I think I am handling it well trying to be grateful for the life that I've had and getting everything put in order but it is so much to process.

I havn`t left home apart from hospital visits for 3 weeks and am just shrinking to a skeleton despite eating as much as I can physically contain. I am scared as to how fast this thing has progressed silently and now evidently.

I am considering getting a second opinion from xxxx or xxxx hospitals although living in Leeds would make travelling to either quite difficult, I will do it if they think they can offer me something more.

Just a few questions 

How do I get more calories in? I cannot tolerate the milk drinks etc and am already eating chocolate, biscuits, pastries etc on top of healthier foods. I can`t swallow bread. I need a source of protein that isn`t milky. Is there a powder that I can add to savoury foods?

Where can I find clothes to disguise my emaciated body ? All my clothes are hanging off. 

Is there anything anyone would advise me to do that I might not have thought about? Anything.

Thanks

Parents
  • Hi Ly,

    Firstly welcome to Cancer Chat and I'm very sorry to hear everything you're going through. I'm not surprised you are feeling such a range of emotions.

    By all means get the second opinion if you feel it would be useful to do so and if you can.

    Some ways to get extra calories could include making smoothies with water instead of milk, or milk drinks that use alternative milks (if you don't like regular milk). There are also protein powders you can buy to put in drinks to help get extra protein. In addition, regular snacking between meals if you're not already doing this would add some more calories and there are of course both healthy and less healthy options for this. You can also discuss other potential options with your doctor/specialist.

    In terms of your other questions, hopefully you will receive further replies to your post now (my reply will mean a few more people should hopefully see it).

    I hope this forum can offer some small support to you.

    Wishing you all the best,

    Ben
    Cancer Chat Moderator

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