Knowing How Long My Mum Has Left - Palliative and at Home

My mum has stage 4 bowel cancer and has been at a hospice for 3 weeks following hospital for 4 weeks and  shes just returned home.

We know she is deteriorating, shes on alot of pain relief and is very fatigued. Shes still eating small amounts and managing to sit on the chair for a while each day. My question is how do we tell how long she has left? The doctors seem reluctant to answer the question but I need to prepare myself for the coming weeks. 

  • Hi KTGem

    First of all, I want to say I understand how painful seeing your mum like this. My mum is in a very similar position, was discharged from hospital and I was shocked at how frail she looked.

    The consultants are often apprehensive to give a timeline, which is actually anxiety inducing, I understand. My only tip would be to try and make her as comfortable as you possibly can during this period. She will remember this, and be so grateful and you will look back and be happy you were able to be with her. If you're anything like me, you'd rather just hide away, but you will be proud of yourself that you did that when the pain starts to slightly ease in the future. Remember to take care of yourself too, you can't pour from an empty cup, as cliche as it sounds. 

    If you ever want to chat about anything, message me. I understand what you're going through. lots of love to you. 

    XX

     

     

  • Hi Londongirl 

    Thank you for replying. Its heartbreaking to see a parent so frail isnt it (it is anyone but especially parents)

    I want to bury my head but I know I need to be strong for her and my dad.. I'm trying my hardest.

    I hope your mum is doing ok at home now.

    My mum has returned to the hospice today as she was in alot of unbearable pain but I know that's the best place for her right now.

    Thank you again for replying. Sending love and beat wishes x

  • Hi K T GEM

    What a painful experience your going I've just lost my mum a month ago to stage 4 bowel cancer and secondary liver and lungs.  I didn't want to know how long or accept it she deteriorated so fast in a couple months.  Spend as much time as you can with them, you will look back and be grateful if the time my mum was very peaceful at end, and I was just pleased she wasn't in pain anymore she fought so hard.  My mam was really fatigued need the end and stopped eating much, sleeping a lot apparently it's the body natural slowing do own process when dieing.  If you need to talk I'm here, take care of yourself you will get a lot of support from hospice etc.

    take care I know what your going through xxx

  • Hi Trazz thank you for replying. Im so sorry to hear about your mum. My experience has been similar as she too has detoriated quickly over the course of the last two months. 

    She is back in he hospice and we've now been told she has weeks left. They believe she has brain mets. 

    Mum has said she dosent want to know her prognosis which I understand, it's just going to be a heartbreaking few weeks ahead.

    Thank you again for taking the time to reply I really appreciate it x