Stomach cancer

Hi

A few days ago my Dad was diagnosed with stomach cancer. It sounds like stage 4 as it has spread to the liver and lymph nodes and he has been told that he only has "a few months" left. He has been told that no treatment is possible and is just being given pain relief and steroids and advice so he can manage to eat. He has always been very fit and seems to have become ill so suddenly, only feeling unwell in the last 3 weeks so the diagnosis was completely unexpected.

I just wondered if there are really no treatment options. I don't want him to suffer with treatment if it is highly unlikely to make a difference and would just make him feel worse in the time he has left, but I want to know that all options have been explored.

I feel a bit in the dark and helpless because I can't visit to discuss this with him until next week and it's hard to find out much on the phone. I am terrified that he might not be here next week after such rapid deterioration.

Thanks.

 

  • Hi Leo

     

    Im sorry to hear about your father. It must be a terrible shock to you all. My husband also has stomach cancer and was given a poor prognosis but he is doing better than expected with good supportive care ( some of which we had to research and go half way round the country to find) and we are still pursuing treatment options. I think you are right to explore all options as our experience is that treatment options are sometimes a lottery depending on where you live and even if nothing comes of it in the end, our view is that we at least did our best and explored everything we could.  My husband has hereditary diffuse gastric cancer . I am happy to tell you our experience and journey if it would help.

     

    Take care

  • Thanks FarmerJoe, I am glad your husband is having a better time than first predicted, it gives me hope. I know the hospital where my Dad was diagnosed has a special unit for this type of cancer so hopefully they have looked at all options. I'm going to try to speak to the specialist nurse dealing with him to get some more information about what has been considered, ruled out and why. The Cancer Research nurse I spoke to earlier today also mentioned some clinical trials. They might not be suitable but as you say, you have to feel that you investigated everything.

    You take care too.

  • Hi that sounds like a good plan. The question we started to ask was 'what is available/ new cutting edge /being trialled',rather than what can you/ this hospital/ the nhs offer . That, along with a whole load of our own research, opened up a whole new world for us in terms of alternative options. Take care and let me know if there is any information I might be able to help with/ share with you.

     

    x

  • It's very kind of you to offer to help and share your experiences. I will see what the medics have to say and then if it's ok with you I will see if this ties up with what options you have found your research. 

    x

  • Hi

    my mum has just been diagnosed with stomach cancer. We are in pieces. Can you give a bit more detail about the alternative treatments you accessed and where please?

     

    many thanks

  • Hi Leo,

    First of all, I'm so sorry for the situation you find yourself in - I know how very hard it is to comprehend and feel and exist all at the same time.

    A little about myself - I nursed my grandfather as he passed from mestatic bladder cancer in the summer of 2019 which was a horrific experience, although I would not change a minute of my time spent with him.

    Fast forward to Spring 2020 and my dad (mid 40s) is diagnosed with Stomach Cancer... (absolute hell, can't even comprehend round 2 of a situation that I have only just begin to process). 
     

    My dad is still here, he was initially told that they could cure him with chemotherapy and surgery - the chemotherapy and surgery both failed and the cancer sadly spread.

    The doctors told him that was it in November 2020,  palliative care options only.. to which we were all devastated.

    However, in response to your questions, my advice is to gain second opinions and consult nutritionists, and alternative therapists.
     

    We are still very much in a war zone, but we have ongoing conversations and trial and errors that are all aimed at prolonging and in an ideal world saving his life. He is taking multiple natural supplements and is in the best shape he has been in since diagnosis. We can now talk on the phone a couple of times a week and he is eating and drinking which is a blessing. 
     

    I'm not saying that this will be the case for you; but for my dad his oncologist told him 'no hope, palliative care to bide you time only' and a second opinion said that if it were him he would try something else and retry surgery and aim for a cure. 
     

    Who knows where this rollercoaster will take us (my aforementioned grandad was given the all clear from his bladder cancer in February 2019 and then his next diagnosis in July 2019 was end of life) - but I feel as though gaining as much information and as many opinions as possible to make things comfortable at the very least are always worth it. 
     

    love and well wishes - I wouldn't wish what we are going through on my worst enemy.

    Harmony