May be months, more likely weeks

Hi, so finally following all the drama from the weekend, and managing to speak to a doctor, we have been given the news that my mums lung cancer has returned and spread. Only way to describe it is "riddled", masses in liver, both lungs, cervix, neck and various places along spine. She is currently waiting for a bed to become free on the cancer ward.

So far, the only treatment offered has been radiotherapy for the spine tumours, in the hopes of stopping further invasion of the spinal cord, and to ease some pain. She has an unstable vertebrae at the top of her spine and needs a constant neck brace to prevent movement and paralysis.

Constant high levels of pain throughout her entire body now, with morphine being given 2 hourly with other pain medication between those doses.

Doctor has advised that in his experience (not a cancer doctor), people in similar situations to hers have at most months, but most likely weeks.

 

She is desperate to get home, but we are not convinced this would be the best place for her, her GP is impossible to get hold of, she lives alone, and has several other medical issues, so we do not believe she would get the care and pain control that she is going to need.

She is barely eating, drinking very little, and is visibly deteriorating in the time between visits.

My sister is holding onto the last bit of hope she can, however, I almost need to know as much as possible to help both my mum and my sister.

Is it wrong to want to know how long she has, to want to be sure she has the pain relief she needs to be comfortable, is it bad she is going to a cancer ward....so many questions, and i feel we are running out of time to get the answers.

Apologies for rambling, 

CV

  • Hi there.

    My mum died on Wednesday 14th. She didnt have cancer but died of COPD from a previous lung cancer.

    She died at home and this was her wish. She had nurses visit to give her all the medication she needed for end of life pain relief. They were fantastic.

    For me I'm glad she was at home. It was comforting for her and more relaxed for me because all her bits and Bob's, and a familiar setting must have made it easier for her.

    I hope this helps a little?

    X

  • Hi Lou41, 

    Sorry to see your mum passed.

    It looks like my mum will not get her wish, she was home for less than 24 hours before having a fall (she was alone for less than 20 minutes), back to the hospital, they made the call to move her to a Hospice after she deteriorated to the point we thought she was going to die. She did not at that time. Just taken a call from her consultant, results have shown severe dehydration (constant d&v) along with severe low potassium levels. Option to treat at the hospital aggressively has been refused, consultant called to advise and confirm her wishes. She is "happy" at the hospice, but has now not eaten for almost 3 weeks, and is unable to drink as she vomits everything straight back. She has a syringe driver now as they are not able to give her tablets or find veins for IV fluids/antibiotics etc.

    Consultant has said that he tried speaking with her further but shes exhausted today, she may not be here next week as everything is deteriorating so quickly. BP is dangerously low, bed bound, catheterised, "nappies" for bowels, huge amounts of weight has been lost.

    2 months ago she was fine, now she is adament she has had enough and has given up, nothing left to fight with.

    It is very hard seeing such a fiercely strong, independant woman losing all sense of pride, dignity, and fight, only thought now is the hope the end is quick for her sake so she is no longer suffering

  • I have a very close friend who has been having chemotherapy which using two different types that were unsuccessful in stopping the growths in her bowel and I believe that are now in her bladder.

    i am in close contact with her family but don’t like to add to their sadness so have turned up here on the forum.

    she was taken in to hospital and put on the Cart T programme. Heterosexual blood was harvested but on the day of the planned transfusion deteriorated and there are now plans going ahead to return her home to be with her family. She was unconscious with shallow breathing 2 days ago but seems to now be conscious tearful and confused. They have been told it will be weeks not months. Very distressing.

    Can you please let me know if this what to be expected.

    thank you