Hi Jennys, I would give the McMillan nurse a call, they are there to see you through this.  No one on here can answer your question as we're all just dealing with it ourselves.  Speak to someone involved in his care for a better understanding of what will happen.  Take care, Carol x 

Thank you Carol I will call them. X

Hi Jenny, my 29 year old daughter was diagnosed on 30 July with duodenal cancer which has spread to her liver, she was living and working independently in England up to this point, she attended hospital with a suspected blood clot in her leg which was confirmed but scans etc gave the full horror of her diagnosis.  She travelled by road and ferry on 12 Aug and is at home with us in NI despite being told she would never be fit to leave hospital.  She has had four sessions of acupuncture which she absolutely can’t get enough of which allows her to sleep peacefully for several hours after, the therapist is fantastic at moving the fluid from her feet back up her legs by massage. Her oxygen dependency has gone down from 10 to 2!  She has been making the most of every day, she has been to a local pottery, had a spa day, been out in her wheelchair to the ice-cream parlour this afternoon and is planning a garden party for Sunday.  Her palaitive care team  GP and DNS are amazed by her inner strength as are we, she accepted the news very quickly never saying why me or shown any anger she has made life very easy for us so far, I too do not know what to expect but am so grateful to have this precious time with her, she has a hospital bed in our dining room and I a single bed beside her, she is sleeping away as I type.  I hope you find the answers you are looking for and know that you are not alone xx

Your daughter sounds amazing. Thank you so much for replying.  My husband has recently been rediscovering wood turning and has made some beautiful bowls and candle sticks. He desperately wants to carry on with his new hobby. I hope he can as long as possible. I guess I should try to keep positive for the now and not try to look into the future too much. 

i wish you and your daughter all the very best. Xx

Thank you Jenny.  Every day is a gift, I’m her mummy so I have to continue on as normal, the basket case can wait she’s no use to me right now.  Just imagine how beautiful your candlesticks will be with candles flickering in them on a cold winters night, such warmth and comfort they will give you knowing they were made by hand for you, bring life to you room xx

Hi there sorry to hear this, my Mom has cancer and is on steroids. But was taking them on the evening it was changed to morning as was affecting her sleep. Also now being stopped as one of the side effects is skin going like paper the palliative nurse said. 

Just wish we had some guidance 

Stay strong xx