My Uncle died of Glioblastoma

My Uncle( my Dad's brother who I was very close to) died last Monday morning, the 20th July He was diagnosed with Glioblastoma on 15th April, the prognosis was 3 months so the time frame was almost exactly to the day.  It was a complete shock, he was living a completely independent life, the only thing we noticed that was unusual was sudden onset of confusion- this was very out of character for him. He also had incontinence so when he was taken into hospital we were thinking UTI possibly with delirium.  Then came the bombshell, he had a massive tumour that was inoperable. He deteriorated very quickly after having a few falls. We fought to get him moved to the Hospice. When he arrived from the hospital he could not talk, could not feed himself and was paralysed on the left side. The Hospice were amazing. He was there for 7 weeks and they were able to treat him with just the right balance of steroids to give him back all if these functions. He was eventually at a point where he was to be moved to a care home as he sustained this level of wellness for some time. We knew things would detonate if we moved him but understood there were people who desperately needed the bed in the Hospice. He battled a few chest infections  but eventually was moved on 14th July. He moved to the care home and within days he detonated, he was diagnosed with havibg fluid on the lung and he refused to go to hospital to have it drained, he had fought enough. He died the following morning.  His death certificate says Glioblastoma but I was just wondering did anyone else experience similar symptoms that were related? We thought it was a seperate infection that caused the fluid build up in his lungs. My heart goes out to anyone who is supporting a loved one go through this dreadful disease.  The rapid decline is hard to watch. Throughout the process however, my Uncle suffered no pain, he never experienced headaches and up until the end was conscious and talking.  We just adored him and it's going to be so hard not having him with us anymore. 

  • Hello Glittershine, 

    I am so sorry to hear about your loss. Our sincere condolences on behalf of the Cancer Chat team. It must have been so hard to watch your uncle's rapid decline but it must be a relief to know that throughout all this your uncle didn't experience any pain and remained conscious and chatty. It sounds like the hospice looked after him really well. 

    I hope that you will hear from others who have had a similar experience and that they will come and share their story with you. 

    We're all here for you anytime you need to talk. 

    Best wishes, 

    Lucie, Cancer Chat Moderator