Caring for my dad with advanced prostate cancer

My dad was diagnosed with advanced prostate cancer in October 2016. It had spread to his lymph nodes, clavicle, sternum and pelvis. His PSA level was 4000. He had a 6 month treatment of chemo which had initial positive results. By February last year he was diagnosed with castration resistant metatastic prostate cancer and offered radium 223 treatment. After 2 of the 6 planned treatments he was so ill that he requested to come off of the treatment. By December last year he was beginning to decline. His shoulder bone shattered and he has been in consistent pain. He was hospitalised in February where they discovered mets on his lungs and since then his decline has been rapid. His PSA in feb was 46, it is now over 700. He is under 6 stone in weight and hardly eats or drinks. He is pretty much bed ridden (in a care home) and in constant pain despite high doses of painkillers. He is severely aneamic but due to all of his other blood test results they have ruled out a blood transfusion. The care home and palliative nurses have been amazing and they are allowing me to see him as often as I can. Most of the time he is really confused and it is difficult to have a conversation with him. He gets very tired and his concentration is very poor. I keep preparing myself for the worst and he suddenly has a better day (like today) He has phoned me several times and had almost normal conversation. He has been quite upbeat. It sounds awful but  my heart is on a roller coaster of emotions, every time the has a slightly better day I almost allow myself a little hope that he has a bit more time. We haven't been given a time but just find it so hard to see him in so much pain and no quality of life. It is truly breaking my heart.

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    All the emotions you are feeling are completely understandable. 

    It's so hard not knowing when the time is going to come and preparing yourself for it, and just wanting the suffering to end for them. 

     

    I'm going through something similar. My emotions are a roller coaster - in one sense I want all of this to be over as the waiting and watching him suffer is so hard.  But then when my Dad seems to detiorate and I realise the time to him passing is closer, I realise that this being over is him being gone. We're findings it tough to control some of his symtoms which is also making me feel useles and I'm sad that I can't make him more comfortable. 

     

    I'm sorry I don't have much to say, just that what you are feeling is very normal and I hope you don't feel any guilt for any of the emotions you may feel. You will be up and down with each day and through the week. Remember to take care of yourself too.