I posted a while ago about my mum.
2017 she was diagnosed with stage 2 breast cancer. She had half of her breast removed and went through radiotherapy. July of 2019 she discovered a lump on her neck that began to become painful. Months of been fobbed off and appointment changes or seeing a nurse instead of someone in the cancer unit to be told it was only a rogue gland. In October mum felt better knowing it wasnt anything to worry about but kept having a few dizzy spells, falling and feeling weak. Alot of headaches and generally feeling unwell. After xmas it looked like my mum only 56 at the time had a stroke, her face looked like it dropped. Her left leg and arm were going funny. Signals weren't working for her left arm to do stuff. Driving was a nightmare and I knew something wasnt right. Doctors said it was a viral then a week later they said she had sciatica cause her back was hurting. End of jan I needed a 2nd opinion and doctors called an ambulance as worried it was a stroke. Within 3 hours, she was told she had tumours all over her brain by the stroke team at the hospital. A full body can was done in Feb and found a dark patch on her lung. But they said it looked fine and nothing to worry about, but they would take a sample and suck some of the flem up. March she was told she had small cell lung cancer that was incurable and they believe it had spread to her head. She was told months with treatment. End of april they started treatment. Chemo, and after a scan the tumours were reducing so they stopped chemo and started radiotherapy to "blast them" according to the consultant. Mum became I'll not long later and had a blood transfusion. On the 2nd of june mum had her last treatment and rang the bell. The side effects were as expected. But she seemed to detoriate more, urine was darker, the coughing was loose and she was feeling sick which resulted in not eating and drinking as much. I spoke to consultant as my mum and dad were under the Impression she was getting better and that she could be cured or shrink them so small that she might have a fighting chance. The consultant told me he was an optimistic person but also a realist. He was trying to prolong my mums life. But it was till pallative care. Couldnt give a time frame until he saw my mum on 22nd july for another scan update. Mum became so weak, she could barely weight bare and wanting to give up. On 17th june 2020 mum started making sheep noises barring. Couldnt stop it unless talking to us. She did it for hours. I then thought urine infection or swelling. She kept rubbing her belly and saying she had trapped wind. We rang 111 who then admitted mum in to hospital at james cook to have a look. She had a slight temp and the paramedics initially thought she had an infection or covid. Didnt realise that would be the last time we would see her at home again. Every day they would call and give us an update. All good news, doing well, hope to be home. Then saturday am told she was in alot of pain through the night and given her pain relief. But my dad said on the friday when he called her at hospital she could barely talk as high as a kite and she wanted to go home. I asked on saturday what pain relief was it and I was told morphine. I knew then it was going to kill her. I begged them not to give her it as she requested no morphine. The oncologist said they explained the procedures and also got her to sign a DNAR form while under the medication. Which I think is unfair. They still said they would try get her home sunday providing DN are about. Sunday my dad messages me and says no good news. I find out she had days if that to live. The body scan from earlier that weak shows it had spread to her pancreas. We were allowed to visit her on sunday and would try get her home. On sunday when I said good bye I thought that was the last time I'd see her. I didnt sleep that night worried she would die alone in hospital. Monday I went to hospital with my dad at 7.30am. I could smell death, her knees were blue, her toes were turning and so cold. Her skin looked yellowy gray colour. Her urine was very little but brown with bits in. Mum was high as a kite and had 2 morphine drivers in her arms that kept topping her up. I am thankful she knew we were there and we got to speak for abit. I played some music in the background and kept reasurring her she was ok and to go to sleep. 11.10, she took her last breath. It was awful to know I dont have a mum anymore. She had so much to give, a grandchild she would never meet. I am so angry at the system, how my mum was miss diagnosed and never seen properly after her breast cancer surgery. She had issues and lumps and fobbed off saying it was scar tissue. Her headaches, lump in neck was a rogue gland, viral or stress. My poor mum wanted to fight and live. She has left a huge whole in this family and the town I am from. We feel let down at not getting to see the right people and them assuming it's so so without going through proper procedures. I want to know why... is it funding?? Why do we pay our tax and NI for if we cant get properly treated. If in doubt peeps get a second opinion or go private.