Don’t know which way to turn

My mum was diagnosed with stage 4 lung cancer 9 weeks ago, she has liver metastasis and it has also spread to her lymph nodes. On top of this, they discovered a DVT. She had a permanent lung drain fitted 2 weeks ago and the district nurse is draining it every other day, getting between 300 & 400ml each time. She has really deteriorated in the past 2 days, she is losing very heavy blood and clots from her rectum, her skin is yellow, she is anaemic, doesn't want to eat or drink, very confused and dehydrated and can no longer manage stairs or getting herself onto a commode. At the moment we are struggling with providing care apart from carers coming in once a day. The doctor thinks that the cancer may have spread to her bowel. Has anyone else experienced anything like this and based on these symptoms are we looking at a prognosis of days or weeks as we are unsure when to instigate her end of life treatment. We are finding the whole process very distressing and feel as if we have been abandoned

 

Update - unfortunately the cancer has now spread to mums spine and her legs are now paralysed. The palliative care team, district nursing team and the care agency have been fantastic and made mum comfortable so we can spend some quality time with her in her last few days. Anyone in this situation please fight for what you think is right, we are so grateful for all of the support we are now getting, it was just a case of identifying the correct route to take which turned out to be the palliative care team who then set the wheels in motion. Sending warm wishes to everyone going through the same journey as us

  • Sorry to hear about your mum  

    my mum had stage 4 lung cancer that had spread to her brain 

    doctor said it wasn't curable and that she had 4 months to live without treatment and she could maybe get an extra year if she had treatment but when treatment day 5th may (COVID delayed it abit ) she took Ill she was confused and couldn't get up she ended up needing help 24/7  me and my sisters cared for her taking turns staying over thru the night with her with the nurses coming to see her every week. She was eating well until the last 3 days before she passed away 24th may 

    All I can say is keep talking to her tell her you love her give her hugs. 
    they say all cancer patients are different so don't go by my mums end. 
     

    sending you hugs and if you want someone to talk to feel free to inbox me x

  • Hi  

    My mum has stage 4 metastatic lung cancer with metastasis in her both lungs, liver and bone she was told they couldn't give a prognosis but with targeted treatment she may get an extra year we are 4 months in now and she is similar to you're mum it's very hard and heartbreaking too. I feel this forum is very helpful but everyone is different we to have felt abondoned because of covid probably let's hope things get better and we get more support aswe  come out of lockdown. I totally understand and i hope that hearing people in the same situation gives you some sense of not being alone.  

    Love and hugs

    Gillian

  • Hello Gillian. and others

                                         sorry to have read your posts and your feeliings of abandonment,which l can fully empathise with.Whilst l like many others share your hopes for more support post lockdown,l cannot hope but feel there are so many fires started burning during this period,there are not enough firefighters in cancer care to get control upon them for a long time to come,so its likely to be desparately difficult for those poor souls facing having to go through the trauma feeling they are on their own.

                                                                                                                            Having fought this monster some years ago,l can feel the destructive pain of having to do it with little support, and really do feel for those doing so at this time,

                                                      You are not alone, there will be so many of us on this forum who appreciate the difficulty of your situation,

                                                                   take great care of yourselves,

                                                                                                                 David