mum's treatment has stopped working

Hi all 

 

I came here for someone to talk to as I am so so lost and feel absolutely heartbreaking and I know you will understand my beautiful mum was diagnosed with breast cancer spread to bones lungs and liver and was given a max of 3 years it will be 2 years this September she was taking palbocolib then that stopped working so she was offered a trial run and referred to different specialist within 4 months it went from working to stopped working and liver spread so stopped trial and referred back to original specialist this happened on Tuesday and since then I haven't slept of the what next is this the end or is there more that can be done I can't imagine my life without her and it hurts deep the worst which I'm sure your all understand is watching someone you love so much suffer so much and not being given a break I'm sorry for you all whatever you may be going through hope and love sent your ways 

  • Hi XMummy

     

    Very sorry that you find yourself here. 
     

    I know only too well the pain and anxiety you're going through at the moment, because I experienced the same with my parent (different cancer...lung which had spread to both lungs, liver and likely elsewhere). 
     

    It's a really scary place to be...but we somehow....cope? As you are now. Watching a loved one battle cancer is so hard, I know. 
     

    You're welcome here any time. Would you update us regarding any next steps that are planned for your Mum? And, also - as to how you are doing as well. Xx
     

  • Hi

    Sorry to hear about your mum

    My situation is v similar, give 2 years or less. BC with mets to liver, ribs, spine  femur  hips, pelvis and skull. Had palbo which lasted 1.5 years, then destabilised with spread to my sternum, liver now clear. In my liver. 

    Was moved to Capecitabine which stabilised me, for eight months and markers now going significantly up, so back to square 1  but still here :). 2.5 years later.  Speak to your mums onco and make sure he discusses the options. There are some out there that are considered oral chemo that provides a good quality of life. Unfortunately some will work, some will. Different people respond better to certain treatments.

    I am at the stage that additional pet and and CT scans to back up the bloodwork. My onco seems confident that there are treatments that keep us going for a while, but aware that the options are not limitless. So I find out Wednesday what the course of action will be and hope it works or try something else, 

     

    I am hoping that the new drug enhertu, gets approved in the UK.

    If you feel that there is no consistency or your not getting the answers you need, then revert to your trusted oncologist who can give your mum the true facts. 

    It is scary, but find out the answers to the scary questions and I hope that you get the information you need. Sometimes treatments don't work, but others can

    Thinking of you and here to chat more X