Hi Emz

How awful for you, if you feel you dont have enough information from your mum your dad could ask the dr to call you. They will do as well as in normal times familys can visit and find out information that way. 

Whats a radiotherapy injection, I havent heard of that?

I hope your mum gives you more information later. X

Do take care and I hope you have some good news about your dad. 

Like you I wont give up x

Hi Ollie I took your advice and called the hospital, had ward name and bed number etc left my details for a callback explained I'm in London far way from Step Dad and that info is being relayed via my Mother who I believe is being highly controlling in this situation. It's understandable but it doesn't help. Anyway no callback. 
 

Chemo apparently is happening today and the radiation injection is something that could happen at a later date possibly? The info I am receiving is usually wrong so I've decided today I'm going to take a step back and wait for updates. 
 

One thing I've learnt Ollie is that those families with difficulties still have those difficulties during sad times and they may even be exacerbated somewhat. 
 

I speak with my step dad direct when I can now and he can also ring me at home :) hoping he will be home soon so we can at least video call him. 
 

We won't give up Ollie! Every day counts! Hoping and praying your Dad is doing well at home and he is obviously surrounded by so much love. That's all that matters at the end of the day. LOVE! 
 

hope to speak soon 

Em

Hi Emz. 

How sad and frustrating for you, if your dad doesnt come home soon maybe he could ask the dr to call you. You really do deserve to know whats happening.

Ill keep my fingers crossed for you that the chemo goes well and he will soon be home. 

My Dad is doing fine it makes me wonder if the drs are right as its over 2 weeks since they said 6/8 weeks, im hoping they are wrong but also terrified they are right and he will suddenly go down hill.

I find the not knowing the worst of it, still no news of when liver biopsy is, you would think he had all the time in the world the way the drs are going. 

I hope we all have a bit of positive news in the next few days xx

Thanks Ollie so appreciated 

I think mum has taken charge! 
 

Yep I also hope he doesn't react bad and can come home, fingers crossed. They are starting him with gentle chemo if there's such a thing. Like I said before I have so much more respect for what cancer patients go through. They are so brave. 
 

Ollie it's so hard once they give the prognosis but I strongly believe estimates can be way off, I tend to focus on accounts where they have been, that keeps me positive. 
We must focus on one day at a time and stay grounded through all the worry and turbulence. My Dad is good too! But I have told him to be honest if he's not because that's important also in the level of care he receives. 

My Dad was also due a liver biopsy after his lung biopsy but then I never heard anymore. Not even sure if they did it at the same time. I hope you find out soon what type of cancer your dad is dealing with and that treatment options become available should your dad wish to access them. Is he on any meds at all? 
 

It felt like we were waiting for ages for answers in the last two weeks but then I realise how quick my dads MDT are working and I know they are doing everything in their power to help, it's just confusing for us who are literally waiting every minute for updates. 

Im still adjusting to all this. I just wish I could see him but with him being vulnerable to infection after chemo I've decided not to visit with my two small children because of the risk. 
 

Day at a time. 
 

How often are you visiting your dad? 
How's your Mum coping with it all xx 
 

Awww Ill Keep my fingers crossed for you. 

Re the low dose chemo my dad has been told the same, if he has it it will be low dose tablet form. 

It wont necessary get rid of all the cancer but will either shrink it or stop it growing.

We are all happy with this as he would be at home and able to carry on doing what he wants. Also it will hopefully extend his life to years rather than weeks. 

When I go down with the children We pick a nice day so we can all be outside which we all feel more comfortable with. 

At the moment ive been going on my own on a sunday. I work in care so have PPE so I call that my hugging outfit. When I take the mask off I sit over the other side of the room. Works for us and I hope maybe you will be able to do the same. 

We are 60 miles away so not on doorstep but not to fsr to go for tbe day. 

Keep positive and as hard as it is with all the uncertainty keep a bit of humor x

Hi Emz

Im so pleased to hear about your dad what great news. Do you know how often he is going to have the chemo? Im so pleased your dad felt ok after his chemo long may it last.

I hope you manage to get to see him very soon you will ve suprised how much better it makes you feel. 

I dont think i hardly slept a wink when my dad was in hospital and when he first came home. 

After seeing him last sunday although it doesnt change anything medically its so nice to see each other face to face, much easier to talk properly as well. 

Im sure it will be the same for you.And if you can stay in and air b&b its a mini adventure for your children to. X

Hows your mum Claire93? 

Hi Ollie,

The doctor's rang me on Monday to say her blood tests results wasn't great, they did a couple over a 7 day period and each one came back with a higher infection rate and she's COVID positive but showing no signs and not struggling with it what so ever. She's still in hospital at the moment, the doctor said that the results from the blood tests are really worrying but they are happy with how settled she seems to be. She's been eating and drinking and today she finally asked to leave her room and sit out in the lounge area which is such a small thing but it really made my day. Unfortunately I'm still not allowed to see her which is so hard.

How's your dad? And how are you? X

Hi Claire. 

How awful it must be such a worrying time for you. 

I hope your mum continues not to show any symptoms of covid 19 how awful that she managed to catch that to. It must be so hard not being able to see her. I do hope she recovers from covid very soon and you can see her. 

My dad is still doing well he seems completely normal apart from the numb foot. His liver biospy isnt till 20th of this month, that works out 3 weeks after diagnosis which considering they say he has 6/8 weeks with no treatment its a long wait.

As his so well I keep hoping they have made a mistake but then feel terrified he will suddenly deteriorate. 

Going to drive up and see them on sunday.