Esophagus cancer

Hi my dad was diagnosed with esophagus cancer 4 years ago. Unfortunately it had gone through his lymph nodes and into his liver. He also had a blood clot which took away a bit of his kidney. When he was diagnosed he was only given 4 to 6 months to live.  But here we are 4 years later.... on 25th feb my dad had a big seizure of 20mins and rushed into hospital where we were told the cancer had spread to the brain and he had 2 tumours 1 very large 1 small.... we were all told to come and say our goodbyes that night but here we still are with our iron man dad still very much with us and doin ok....he is about to have radiotherapy on thursday as even though we were told he only has lower months to live this may give him a little longer.... just wondering if anybody had been through something similar.......were you in pain, once it got to the brain how long did they have to they passed,  did you get help when they were near end of life...etc

  • Hi Belle17,

    Welcome to Cancer Chat. I'm sorry to read about your dad - I hope you're getting on OK. He sounds like a strong character.

    While I can't help with what you're looking for, my reply will boost your post so more people will see it, and if anyone has similar experience or relevant advice to share then hopefully they'll be along soon.

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    I hope you find Cancer Chat useful - it is a very welcoming and understanding community of people.

    WIshing you all the best,

    Ben
    Cancer Chat Moderator

  • Hi Belle

    Despite this horrible disease, Your dad sounds amazing! Everything he's been through and still here with you .. I hope he stays around for a lot longer too despite the bad news--sometimes doctors measly prognosis is wrong and people live longer I hope that's the case with my mum who has the same cancer(I think - some of them say stomach some say oesophageal) mum is a stubborn person who won't go down without a fight so here's hoping ... 

    what treatment did your dad have when first diagnosed? Mum's doctors are quite flippant and aren't taking her wishes into account as regards treatment -she would benefit from an operation but they refused because she is 72 and diabetic. She's had infections but she's over those now I don't understand why they won't operate? Mum doesn't want to die but I think the docs aren't too fussed if she dies. 
     

    sending you and your brave dad all the strength and best wishes.

  • Wow your Dad is a fighter all right  good on him! My husband lost his battle with this on Friday (3rd spril), one year tomorrow since diagnosis.  age 44, too young. His didnt get to his brain  but we met a lady recently diagnosed the same time as him who it has travelled to brain in. Her symptoms were losing balance at first. She has an op and has had radiotherapy and is having rehabilitation ( was paralyzed down one side) but seems positive and cheerful, certainly done better than my husband...i dont know her latest prognosis, dont like to ask sorry,  but hope your Dad continues to fight for  long time yet

  • Hello

     

    i am sorry to hear that you have lost your husband. So good that you were at home and together. This lockdown means that anyone who is in hospital has to be alone and it makes me afraid to ask for help if we need it.

     

    Are you isolated and unable to plan the goodbye you would like? How are your children managing? It is hard to get support from friends and family at present - not normal times at all.

     

    Thinking of you and best wishes

    Ronnie

  • It was weird but oddly intimate and private,  which was what he was really like so it actually suited us! Only those who lived with him were able to attend, luckily that included his mum as she had been staying to help me look after him...he wanted an eco funeral ( natural burial) , no embalming so we kept him overnight at home, then the funeral director arrived next morning and we went straight to cemetery. His mum and I dressed him ourselves,  we all had to help the funeral directors (2 of them) lift him into casket and carry him downstairs to the hearse. Noone else was allowed near us ( and they were fully suited up!). Neighbors watched from afar but couldn't help..felt like the old days but oddly satisfying having to be so hands on. we will have a memorialwhen lockdown is over tho, he gets a native tree planted on him and a small wooden plaque,  so hopefully do it at the same time. Meanwhile none if us feel social but dont have to be which suits us, I am glad we could all be together with him