Living Knowing that you’re dying

Hi all,

I'm 42. I've been so blessed in life with a great career, lovely family, the most adorable son (he's 5). My world turned on it's head 5 months ago when I was diagnosed with pancreatic cancer. I am that woman that went to the doctor with a strange pain that wasn't deemed to be suspicious and heard the worst possible and unexpected news. I'd had no other symptoms at all apart from a weird pain in my side. 

Initially my outlook was positive (cautiously optimistic was the term used ) but things have got slowly worse over the past months. I've not responded to the ace chemotherapy, it may be in my liver now. I have scans later this week.

i try so hard every day to live my best life, enjoy my son and make the most of being alive. That said I'm finding it harder and harder each day to live knowing that I'll die soon and leave my darling boy behind.

ive not posted on any sites before and not even sure why I'm writing this now. Guess it's hard for my family to hear my thoughts as they don't want to admit to themselves just how bad things are.

 

 

  • I go out early in the morning with my dog,  away from people and as you said enjoy the sound of nature it's hard when I wanted to do so much but I keep waking up every morning last Thursday I got taken off the trial I was on because my secondary cancer in my liver has progressed with a couple more tumours appearing and some growing by 2cm's.  they have stopped my chemo which went along side it.  
     

    my oncologist has said there's a further chemo drug I can have but given the current climate I may not get it because I'm considered low priority now, given my prognosis.   Been searching frantically to try and find something else I can do to help myself.   But I am here now so I will appreciate the time I have x  

  • Hello PJ

    I've been reading your story and it looks like you've been quite unlucky in how your cancer was not picked up sooner.  It's quite likely that if you lived somewhere else and had a better hospital / oncologist your prognosis might have been different.  Saying that, I'm also 55 and recently finished chemoradiotherapy in January for cervical cancer.  The oncologist said I was young which I found funny, but as I was quite fit I managed to get through the treatment relatively well.  So another oncologist might think you were young and fit and suggest treatments for you that your current one doesn't think worth doing.  The best thing I did was change my GP in 2018 to a woman led practice, which gave me access to west London hospitals.  I'm fairly sure that was a game changer and the best decision I made.  Is it too late for you to change GP perhaps, or is there a chance you can go private ?  I also took out private insurance this year, as whatever this year holds, I cannot face the long delays that I experienced last year.  I went to my GP in August, but treatment didn't start until the end of November... it was quite a traumatic time.  See what options are open to you, and if none arise, then push for a better service from your current hospital.  Though I know with Covid going on, that cancer patients have gone to the back of the queue unfortunately.  I hope you are well in the meantime though.  Best Diane 

  • Bless you. I am sorry to hear about the trial ceasing. That's hard to take.

    This virus is messing up so many things for so many people. The decisions doctors are making at times seem very unfair to me. We are all human beings at the end of the day and some of this seems almost inhumane.

    Take care and stay safe

    Andrea x

  • When I initial got diagnosed it was after finally getting to see a. female GP, who referred me for a biopsy.

    From January 2019 unti December I always had hope,  my oncologist really thought I'd  beat all odds.  I sailed through the operation, chemotherapy, radiotherapy and  brachytherapy.  She did say I was young and fit, even at 55, ( which made me laugh too) ,  4 days after finishing all my chemo ( first time round)  I did the great north run in the September
    Because the original cancer caused a  pulmonary embolism I had a X-ray in the October before I'd even finished my radiotherapy, it showed cancer in the same lung as I had had the embolism. , long story short in December it showed cancer in the liver too.  We were all shocked, since then I've tried hormone therapy and then eventually this trial, which they took me off and that's where I'm up to.  I think my current Onocologist has exhausted everything,  I was trying to look on the internet to see if I could see other things I could try.   I really didn't think I'd be in this situation 12 months ago.  I thought I'd be training for my next marathon and getting on with living. 

  • Thank you Andrea ,

    it does seem harsh, when your at the end of that decision or it's a family member.  I'm trying to help myself best I can and please  stay safe x

     

    paula x

  • Hi Diane,

    what is your prognosis now with your cervical cancer.  I was thinking of going private but it's so difficult in this current climate, let's hope it changes soon x