I am so angry, sad and confused, how do you cope? :(

My lovely dad was a fine fit man until September when he was very sick and had blurred vision , he visited gp who took bloods and said it was viral.

2 weeks later he had lost so much weight and so I took him to an emergency gp who reffered him to eye clinic at hospital 2 weeks later. At this appointment she made us feel like we were wasting her time.

By the time he went to the eye clinic his sight was so bad he was using a walking stick and looked like an old man yet they said it was catterachs,  gave him drops and said come back in 2 weeks.

By this stage I was beside myself as he looked awful so I went with him and my mum and insisted that there was something wrong and that he doesn't normally look like that ....they did more tests and said he had suffered a stroke and admitted him. Two days later they did an mri and said not a stroke but a tumour and said they were sending scan to specalist hospital and he can go home and wait for a call.

After a week no call but told they were looking into it, a week of complaints I finally drove to the specalist hospital who said it had all been sent back to local hospital 

 By now it is mid October and after a few more days of calling local hospital he was readmitted and told it was an inflammation following the virus and put on steroids.

In Dec he had a follow up and still told inflammation but do another Fri. Called back by neurologist who said something had changed it did look like a tumour and wrote the name on a post it note for us to Google.

Obviously in total shock and then 2 weeks after that bombshell now late feb got an oncology appointment who told us terminal at most 6 months but will so radiotherapy to try to slow down.

I am totally in shock and devastated and I'm soooo angry that his diagnosis was not made in September and radiotherapy  not even started yet.

I am constantly in tears and feel numb, I can not imagine life without my dad :(

 

  • Dear Clare. 
     

    This is never easy. I am very sorry to hear about this and I will pray for you and your father. 
     

    Remember this - no matter what, you will always have your dad. You have him inside of you. Death is a part of our existence, and while we never, ever think it will come to us, sometimes it does. Sometimes it comes in the form of a sudden accident, or a sudden illness, or a sudden disaster. Remember, you still have six months (and potentially more - doctors aren't predictors of the future). You still have that time together, you still have that time to tell him how much you love him, to feel joy with him, to say your farewell to him (for now). We all are to physically depart this world one day, but that doesn't mean that we are gone forever. We live in on in our loved ones hearts and minds. 
     

    Also remember that you can either spend the next six months full of dread and fear, or celebrating his life with him. Take it ONE DAY at a time. For all you or the doctors know, things could change for the better. But regardless, you have this time together in the here and now. That's what matters. 
     

    We are all to depart one day, but not all of us have the chance to have those last few months together. Through all the pain and horror, remember that. I am also coming to terms with the prognosis of my loved one, and it feels like a sharp stabbing pain, but at the same time, at least I have this time with him. 
     

    I will pray for you and your family xxx

  • i know how you feel only too well, i cant say much about my dads case because i have a case in against the NHS but my dad was in hosptial for stents on 2016 they noticed blood in his urine, found cancerous cells but never told him, never recalled him back, never sent the test results to dads GP so dad thought everything was ok and it was just cos of the drugs he was taking 

    fast forward to 2018 dads got cancer of the bladder, hes terminal, and a representative from the other hospital who did dads stents comes to see dad at his cancer appointment to tell him they messed up and that cancer cells were present in his bladder in 2016 but because of a clerical error the results was not sent to my dad GP or they did not recall dad for more tests 

    dad passed away in Dec 2018 and he promised me to fight the NHS for everypenny which a large chunk is going to sue ryder care ... 

    im so mad,  the oncologist specialist report came to me the other month it said had dad been treated in 2016 he would have lived for another 10yrs plus or until a natural death and that the cancer was 100% treatable with 1 round of radiation 

    i shake when i think about what my dad went through ... and he was fully treatable but because of a "clerical error" hes now dead 

     

    fight fight fight how many more lives are lost, and do you know what i dont blame the hospital i blame the govenment for cutting the hospitals ££ so they are running on low staff